Project information

Second round of medical research grants....

To fund important medical research projects into this life taking condition.

March 2011 - March 2013

Charity information

The XLP Research Trust

The XLP Research Trust logo
  • Need


    Although XLP is a rare condition it is life taking. There are a number of major medical research institutes who have already undertaken some research into XLP. This project will help us expand our second round of medical research grants.


    By providing key medical research institutes with some of the seed money they require to kick start new innovative research programs.

  • Aims

    Aim 1

    To fund innovative new medical research programs into XLP.


    » We have already started the process by issuing a call for initial applications. The full process will be completed by the start of Spring 2011.

    Success will seeing new research projects started.

  • Impact


    The long term goal is to improve the chances of an XLP boy surviving the disease. Today the only cure is a bone marrow transplant. These projects will be part of the jigsaw that will ultimately see other treatment options become available.


    We have adopted the Association of Medical Research's (AMRC) code on undertaking the award of medical research programs. This includes the establishment of a medical panel plus peer review of proposals.


    Via the web site and the specific page on the programs we fund.

  • Budget

    Budget - Project Cost: £40,000

    Loading graph....
      Amount Heading Description
      £40,000 Medical research awards To fit in with our agreed medical research strategy
  • Background


    The charity is based in the UK but the awards will be made to the best medical centres who apply and who come out 'top' of the AMRC process. To date we have funded research in: Australia, France and the USA.


    XLP affected families.

  • Why Us?

    Why Us?

    We are the only charity globally specifically working for XLP affected families.

    Read more about the Charity running this project.


    David Hartley

    Chairman - overviews project.

    Dr. Susan Walsh

    Trustee - overviews medical panel for peer review.