“I want to die at home”
This project will patients choice about their place of death by providing a new Hospice at Home Service. The service will offer personal care, and practical and emotional support, for those terminally ill patients who wish to die at home, and their carers.
September 2010 - April 2012
Charity information: Katharine House Hospice
We are seeking funding for a pilot study to provide a Hospice at Home Service which will offer personal care; practical and emotional support for those terminally ill patients who wish to die at home, and their carers. This will be in the Stafford and surrounding areas where no such service currently exists, and Cannock where the current service provision is inadequate.
Our new team will support patients who wish to die at home and their families and friends, through the last few days of their life. The team will be specifically trained to give practical, psychological and emotional support from 2 - 24 hours a day. They will help the patient and family by providing daily care and support. Carers will be able to look after their dying relative at home and also to have time to spend with them without needing to worry about the stresses of caring for them.
To enable more patients to remain in their own homes instead of being admitted to hospital/other.
Activities» Provide physical, psychological and emotional support to patients at the end of their lives.
What success will look like
Success will be...more patients spending their final days in the familiar setting of their own home with their family and friends, and without feeling a burden on their carers.
To support carers so that they are effective in their role and are able to look after the patient.
Activities» Provide advice and practical support for example night sits or shopping.
» Help the carers to learn the value of continuing to be themselves, rather than be consumed by the role of carer.
What success will look like
Success will be...more carers feeling comfortable in their caring role, and feeling satisfied that they honoured their patients final wish.
In the longer term money will be saved on expensive and undesirable hospital admissions, and it is hoped that this funding will be diverted towards enabling more patients who wish to to stay at home for their final days. Longer term psychological benefits for carers are that they tend to recover from the bereavement more quickly and have fewer associated mental health problems.
There is a risk that not enough patients and carers will be aware of the service. We're working to mitigate this by raising awareness amongst the heathcare professionals who might come into contact with those who could benefit from this support.
We would send funders of this project a regular update informing them of our progress, as well as information about any challenges and how we tackle them. We would also invite them to visit us at the Hospice so that we can tell them more about what they are making possible.
Budget - Project Cost: £568,294Loading graph....
Amount Heading Description £473,331 Healthcare Assistants Costs relating to the health care assistant and managers £53,457 NI & Pensions Employers NI & pension £41,506 Other Travel, equipment, call cahrges, uniform
Current Funding / Pledges
Source Amount South Staffs PCT £337,996 Guaranteed Charitable organistion £60,000 Guaranteed Charitable organisation £1,000 Guaranteed
For people living in Stafford, Cannock and surrounding areas the current provision of care for those choosing to die at home is fragmented. The service falls between health and social services and by the time a care package is agreed patients have been admitted to hospital or have become too unwell to discharge home. There is no mechanism to respond swiftly to the needs of those people who are at home at the end of their life, or who wish to return home and who require some level of support.
This project benefist adults at the end of their life from Stafford, Cannock and surrounding areas who wish to die at home. It will also benefit the informal carers of these people.
Katharine House already serves the 150,000 people living in mid-Staffordshire. This project is an extension of our existing services that help families faced with the challenges of an advanced life-limiting condition to live as fully as possible.
Read more about the Charity running this project.
Catherine has been our Director of Nursing Services for 8 years. Her input, as well as that of the new team members will be crucial to our success.