Finding out your son or sons have a life taking medical research condition is one of the hardest things any family will take on. To have no useful easy to understand literature on the condition makes it even harder. This project looks to address this.
Open ended. As we can we want to add more languages.
The XLP Research Trust
XLP is a rare life taking condition. Googling XLP will bring up an array of medical publications that are difficult for any non medical person to interpret - especially if English is not a first language.
By translating family frendly material from English into other languages. We have already undertaken this for some lanaguages and the response back from XLP affcted families has been 100% supportive.
To translate key parts for the XLP web site and materials into a number of languages.
Activities» Appoint professional medical translaters to undertake this project.
» Each translated piece will then be peer reviewed for accuracy.
Success will be...the responses we get back from XLP families who found the translations useful. We have already received a good number from the translations already undertaken.
It will help XLP families around the globe to face up to the long road that they have ahead. It will bring comfort that they are not alone in their struggle. It will help increase the awareness and knowledge of XLP globally.
Accuracy of translation is everything. We believe that we can get around this by both appointing a professional translations company and the subsequent peer review.
By email update if they allow. The fruits of their donation will appear on our web site.
Budget - Project Cost: £5,000Loading graph....
Amount Heading Description £5,000 Translation Proejct Paying for preofessional translations of key parts of the XLP web site and supporting docuemnts into
Whilst the charity is UK based we work globally. The impact of this project will depend on the language translation undertaken.
The samll community of XLP families globally.
We are the only charity globally working specifically for XLP affected families.
Read more about the Charity running this project.
Overseas the translation of the project and subsequent peer review. Overseas load onto web site.