The Integrated Prevention of Disability Project
A cost-effective & efficient disability care programme to manage 3 diseases which ruin lives with a single approach. It prevents the worsening of disabilities & trains patients & their families in self-care techniques without them having to rely on outside help & expensive materials
January 2010 - December 2013
Charity information: Lepra
In the project area, there are over 40,000 people disabled by leprosy & 44,000 people affected by lymphatic filariasis, causing severe physical & psychological disabilities. With LF there is swelling of the limbs and genitals, fungal infections and fevers, with leprosy, ulcers and nerve damage. Both often result in loss of mobility & function. There is a huge need for counselling, rehabilitation, learning self-care techniques & health education, to increase awareness and reduce stigma.
100 self-support groups will be set up in 4 districts so that affected people can learn self-help techniques and motivate each other. 3,000 peer educators will be trained and 800 government health volunteers will receive training. 80 prevention of disability camps will be organised to demonstrate self-care techniques. Health education activities will be carried out to raise awareness of both diseases and to reduce stigma against people with disabilities.
1. Improve the quality of life of people affected by LF, leprosy and diabetic ulcer in Bihar.
Activities» Organise integrated prevention of disability camps, teach people self-care techniques and counsel family members to help affected people cope.
» Set up & develop 100 village health forums & through these 100 self-care groups. Distribute self-care kits and protective footwear.
» Train 3,000 peer educators to pass on skills and experiences to others similarly affected.
» Develop the skills of government health staff, ASHAS and Anganwadi workers, village health teams & private medical practitioners.
Success will be a reduction in patients' swellings and ulcers, ease in walking, going to the toilet, doing daily chores.
People will be more integrated and less stigmatised.
Fewer people will be seriously disabled and isolated from their communities. They will have more independence. We will monitor the patients by grading and measuring their disabilities at regular intervals. With consistent self-care, a 60% reduction in swellings can be achieved. We will obtain feedback through health promoters, self-supprt groups and individuals themselves to track progress. There will be improvement in treatment, referrals & monitoring by govt health staff.
The main risks are: regular flooding & adverse weather conditions, political uncertainty/communal riots and the presence of other diseases. We are addressing these by giving people training in emergency management, strengthening the social support network and carrying out health education campaigns covering a range of diseases.
Funders of this project will receive six- monthly reports, in email or written format, describing activities, progress and impact, with any changes made to the action plan and examples of case studies, where appropriate.
Budget - Project Cost: £34,000Loading graph....
Amount Heading Description £4,600 Kits Disability kits /drugs 4000 x£4 £4,800 Training 120 for 40 patients x100 groups £2,400 Training Morbidity management family members £2,000 Training 500 govt health staff £5,000 Meeting Consultation 100 x£50 £3,200 Sharing Self-help groups 40x£20x4 40x £20 x 4 £12,000 M&E Community-based care
Bihar is one of the least developed Indian states, ranking poorly on a variety of development and health indicators. 89% of the population live in rural areas, with limited access to quality Primary Health Care services. Mass poverty, high population growth, poor sanitation and illiteracy contribute to the very poor state of health in Bihar. The incidence rates for leprosy, TB, malaria and LF in Bihar are relatively high, posing unrealistic challenges to the government health system.
4000 people- those affected by leprosy ulcers, LF skin & fungal infections, attacks of fever, hydrocele (swollen genitals), those with diabetic ulcers. They will receive practical help and counselling for the psycho social effects of thes debilitating conditions. At least 3 membersof each family, who will learn how to help them manage their condition with limb care, manual massage and exercise.
LEPRA is one of few organisations with a proven track record in integrated prevention of disability work. We draw upon 85 years’ knowledge &experience of working with people with leprosy-related disabilities and have done similar integrated prevention of disability in Bangladesh and in Puri, India.
Read more about the Charity running this project.
Rajni is Bihar State Co-ordinatorand is a physiotherapist with 17 years’ field experience and is familiar with the local politics and terrain.
He is a Community Outreach worker, responsible for ensuring that consistent and correct self-care is carried out by patients in outlying communities.