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Hospice transition services
We want to develop the North East’s first Transition Service for young adults with life limiting conditions. We will offer short breaks, specialist pain relief and end of life care for 18 to 25 year olds who currently struggle to find any appropriate support during their final years of life.
November 2010 - November 2012
Charity information: St Oswald's Hospice
St Oswald's Hospice provides specialist support for children with life threatening conditions. However, when they reach their 18th birthday, we must disharge them and NO-ONE in our region offers appropriate care and support for these young adults. These young people and their families are left without support at a time when their need is greatest.
These young people need respite within a safe and supportive environment, specialist pain relief and end of life care from a team who know and understand their needs and the needs of their families and friends. With your help, St Oswald’s Hospice will provide this service
To provide appropriate care and support for young adults with life threatnening conditions.
Activities» Provide specialist short breaks in comfortable, welcoming surroundings within the superb facilities at St OSwald's Hospice
» Provide expert clinical support including specialist symptom control, physiotherapy and end of life care.
» Offer a wide range of stimulating sporting and social activities - from hydrotherapy and rebound therapy to a trip to the local pub!
» Offer support, advice and care to families including complementary therapies, peer support groups and bereavement support.
What success will look like
Success will be...all young adults in our region benefitting from a personalised package of care which ensures their quality of life.
Physically, these young adults will benefit from regular specialist symptom control, physiotherapy and a wide range of activities from hydrotherapy and rebound therapy to a 'simple' walk in the park. Their emotional wellbeing will improve with increased socialisation, sensory stimulation and the opportunity to talk, in confidence, about their fears and hopes for the future. We will measure success through regular, formal reviews with each young adults.
Young adults may not wish to use the service. We are designing our service in close consultation with potential service users to ensure it meets their requirments.
Commissioners may not refer to the service. Again, we are working closely with colleagues in statutory agencies to ensure that we meet the needs of commissioners and fully understand how much contracted income will be available to us.
Donors will be invited to visit the new service if they so wish. They will receive regular updates through our newsletters and any further written communications which they request. All supporters can follow our progress on Facebook, Twitter and our website.
Budget - Project Cost: £473,000Loading graph....
Amount Heading Description £123,000 Capital works Developing a young adult living area £304,000 Staffing Specialist clinicians for 2 year pilot phase. £46,000 Running costs Transport, clinical consumables, activities etc.
Current Funding / Pledges
Source Amount Department of Health £264,000 Guaranteed Charitable Trusts £81,000 Guaranteed
The service will be located in Newcastle upon Tyne
Our new service will benefit all young adults with life limiting conditions, e.g. Muscular Dystrophy or progressive neurological conditions and their families within North East England. (Northumberland, North Tyneside, Newcastle, South Tyneside, Gateshead, Sunderland, North Durham).
The development of a transition service at St Oswald's is the best option for our beneficiaries and for care services in the North East of England because:
a) The majority of families already know and trust our team.
b) In this region, only St Oswald's offers a multi disciplinary team with the necessary skills and expertise to provide this service.
c) Our purpose built facilities require only minor changes to accommodate young adults making usthe best option in financial terms.
Read more about the Charity running this project.
Children's Services Manager. Jackie is a highly skilled children's nurse and a former Children's Community Nursing Manager in Northumberland.
Project Leader (Transition). Lynne is a very experienced social worker and former Head of Short Breaks for Newcastle City Council.
Our staff nurses, health care assistants and the doctors who support them have many years' experience of providing specialist palliative care.
We are so grateful to our volunteers who provide support in all services from administration to transport and patient care (as appropriate).