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Scottish Huntington's Association Youth Project
Experiencing the gradual transformation and loss of a loving parent to Huntington’s disease (HD), coping with the caring responsibilities that result, and coming to terms with the 50% inheritance risk, is highly challenging for the 700 children and young people in Scotland who are part of HD families.
Our Youth Project provides long-term counselling, group activities and parental support that is tackling the high rates of substance abuse, homelessness and suicide that result from the stress of growing up with HD. We offer a life-line to the most vulnerable young people in the HD community, helping them to realise that they do have a future and life is worth living.