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Expanding our family support in to North Wales
We have a number of families facing childhood cancer in North Wales who are struggling to access support in their area. So, we are launching a pilot satellite project to evaluate the current need in North Wales, with a view to extending our support service in this area.
October 2018 - September 2019
Charity information: The Joshua Tree Holiday House And Support Centre
With North Wales being such a huge distance from Alder Hey our Welsh families do not have the capacity to attend our support sessions on top of long journeys to hospital. We are also too far away to offer our full support service without impacting services already provided in the North West. We held a Family Information Event in Conwy in April and gained 7 new referrals that day. The event was a great success and confirmed the need for our services in the area.
Our Family Information Event questionnaire revealed that families are interested in Monthly Saturday sessions, Sibling support, Tutoring, Counselling, Play therapy, Carer breaks, Practical support, and a Listening ear. Our new support worker based in North Wales can raise awareness whilst also visiting and supporting our Welsh families. This will also entail running a monthly Saturday Session where our families can experience the support currently offered but far closer to home.
Reduce a families feeling of being alone and unsupported
Activities» Our monthly Saturday Session where the children play allowing parents to take a break, talk to each other or one of our trained Family Support staff
» Attend hospital to aid families during and after appointments, decreasing stress levels particularly if siblings are present.
What success will look like
We collate case studies from families that feel able to do so and we have recently launched our ambassador programme. Both these elements will be used to demonstrate our success.
Increase families well-being on their traumatic cancer journey
Activities» Therapeutic support including 1-2-1 support, play therapy and support groups or just someone to talk to
» Practical support (home help, costa vouchers, food provision, travel assistance) and signposting to sources of information.
What success will look like
We are working on a feelings tree involving branches of 'feelings' like socially isolated, well being etc. and we will ask the person at relevant intervals to score themselves.
Supporting the poorly child and siblings find their new 'normal' post treatment
Activities» Educational support, including homework clubs, individual tutoring and liaison with staff
» Health and fitness sessions, particularly for our young people by attending PT sessions
» Support and training for schools
What success will look like
We receive feedback from both the child and PT/tutor etc on progress made and if further assistance is required. This will be collated appropriately.
Experience shows that family members need different types of help over different timescales. The Joshua Tree encourages long term relationships particularly once much of the clinical and social care support ends on completion of treatment. With our support families are able to find their 'new normal' and recover from the traumatic impact childhood cancer has on the whole family not just the poorly child. Making our families more robust and able to cope long term.
Through research and talks with our clinical partners plus our Family Information event we know that there is no other service like ours available in North Wales. We always look to work alongside other providers so we don't duplicate services. This removes the risk of other competitive services.
As we do not charge for our services, funding is essential and therefore the biggest risk to the projects continuation. We have applied to other donors to spread the funding risk.
All funders will be mentioned in the launch media releases. We will also provide a written report at the end of the pilot year with family numbers and outcomes achieved plus the likely continuation of the project. We try to provide video content where applicable for funders to use as required.
Budget - Project Cost: £10,190Loading graph....
Amount Heading Description £6,000 Staff Part Time Support Worker - 1 1/2 days per week £750 Travel Travel expenses £750 Laptop For use by support worker £720 Room Hire For 12 Saturday sessions £540 Entertainer Sessional child entertainer for 9 Saturday Sessions £180 Refreshments Tea, coffee, food for Saturday sessions £1,250 Support Sessions 25 sessions to cover PT / Tutoring etc
We are looking to cover all families in North Wales, with our base probably being located near or in Llandudno, this being reasonably central to the area.
We support all families in need, irrelevant of any ecomomic or other demographic.
Any family who has been affected by childhood cancer with the child either currently on treatment or post-treatment. This support is for the whole family, including parents/carers, the poorly child, siblings, friends, grandparents and the wider family.
As we already run our support services in North West England we know how to provide the best support to our families. We have gained amazing regional community support who always go above and beyond to raise money and awareness for our charity.
With our work with Alder Hey Children’s Hospital Oncology Aftercare Service, we receive direct referrals from the clinical staff. We are also able to leave leaflets at the hospital for our families to take away with them and self-refer if they prefer
Read more about the Charity running this project.
CEO and Founder. Will liaise with new support worker and help to build relationships with local hospitals and other partners.
New Staff Member
New part time support worker, will become key contact worker for our Welsh families as the service grows
Family Support Manager, will provide full back up to the new staff member and ensure full training and support is given.
Family Support Co-Ordinator. Will help plan and support saturday sessions and other events held as part of the Welsh support project