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Project information

Rebuilding positive futures after meningitis

Meningitis can affect anyone, of any age. The disease can kill within hours and for those who survive, the physical and emotional aftermath can be devastating and lifelong. Through this project we aim to empower families with the resources they need to rebuild positive futures after meningitis.

It is an ongoing project

Charity information: Meningitis Now

Meningitis Now logo
  • Need


    1 in 3 people who survive bacterial meningitis and associated septicaemia can be left with life altering after-effects, such as hearing loss, amputations and brain injury. Our research with 1000+ people affected by meningitis found that 9 in 10 people living with after-effects experience mental health issues. People may no longer be able to work due to their after-effects or parents may no longer be able to work due to their child’s care needs after meningitis – creating financial pressures.


    Our Rebuilding Futures Fund allows people to apply for funding from Meningitis Now to pay for emotional support such as counselling or creative therapies. In 2019, families will also be able to apply for practical items to help ease the financial and practical pressures that meningitis leaves behind. This may include, for example, mobility and specialist equipment, training, hearing therapy and costs associated with funerals or travelling to medical appointments.

  • Aims

    Aim 1

    Award funding to people affected by meningitis to make a long term positive difference


    » Promote the programme to people affected by meningitis via website, social media, press, partner organisations and our staff and volunteers
    » Monthly panel meeting using assessment criteria to award funding where there is clear evidence that our funding will make a long-term impact
    » Our Administrator will liaise with families about the outcome and support families to ensure the funding is used as intended
    » Follow up with families to assess how the funding made a difference in their lives and use their feedback to make any improvements to the programme

    What success will look like

    Success will be receiving appropriate applications to award at least 8 funding awards on average per month and also receiving feedback from all beneficiaries to assess our impact

  • Impact


    It will empower people to reach their true potential. With the right equipment or training, survivors can return to school or work, participate in sport and social activities, enjoy life at home and time with family. Emotional therapies give the opportunity to explore and reconcile difficult feelings and develop coping strategies – feeling emotionally well and resilient is a vital foundation for building a positive future. We will seek feedback from beneficiaries to assess our long-term impact.


    Applicants must provide evidence of meningitis diagnosis. Applications are reviewed at monthly panel meetings by at least three members of staff. We have stringent criteria to ensure funding will have a positive impact.

    Emotional therapy is delivered by professional therapists who are registered with recognised professional bodies. Therapists have DBS checks and insurance.


    Donors will be invited to sign up for our monthly e-newsletter ‘Meningitis Matters’, which will incorporate case studies of families we have helped through this project.

  • Budget

    Budget - Project Cost: £135,200

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      Amount Heading Description
      £106,000 Funding Awards Our budget to make funding awards for 12 months
      £11,000 Administrator Part-time administrator to process applications and liaise with families
      £3,200 Support Team Contribution to Helpline Team + Community Support Officers who promote this support to families
      £5,000 Promotion Printed resources and staff time of PR and Digital team to promote the service
      £10,000 Infrastructure Needed to make this project a success – premises, utilities, postage, IT, senior management, finance

    Current Funding / Pledges

    Source Amount
    Sobell Foundation £1,000 Conditional
    DWF Foundation £2,500 Guaranteed
  • Background


    This is a UK-wide project. The exact location of where funding is distributed will depend on the needs of our beneficiaries. To ensure applications for financial support are received from a broad range of locations we will widely promote this programme via social media, the press, our regional Community Support Officers and Fundraisers and our 200+ volunteers working on our behalf in communities around the UK.


    The benefit of this project is far reaching – it is not just the individual who has meningitis that experiences the after effects, it is their whole family and wider support network. This support is available to anyone in the UK recovering from meningitis, their families and to families who have been bereaved through meningitis. For example, an application for counselling could be made by a parent whose child had meningitis or creative therapy could be for a sibling.

  • Why Us?

    Why Us?

    Meningitis Now is the founder of the UK meningitis movement. Established in 1986, we have funded over £12 million of preventative research, contributed to the introduction of five life-saving vaccines, distributed over 22 million awareness symptoms cards and worked with thousands of families whose lives have been shattered by meningitis and septicaemia. We continuously consult and listen to the needs of families and they have told us that this type of support is invaluable.

    Read more about the Charity running this project.


    Steve Dayman - Founder

    Steve lost his son Spencer to meningitis in 1982. Steve has dedicated his life to supporting other families and campaigning for research and vaccines.

    Community Support Officers & Helpline Team

    They tell families about this type of support and encourage them to apply

    Project Administrator

    To manage the application process with families and correspondence relating to funding awards

    Cheryl Brown – Support Services Manager

    Leads our Support Services, including the Financial Support Programme, and chairs the monthly panel meeting to assess applications