Project information

Early Diagnosis is critical

At present over 45% of people living with scleroderma waited 3 years or more to get a diagnosis. We know that scleroderma is most active and does the most damage within the first two years. In order to improve quality of life we need to reduce diagnosis timescales.

2 years

Charity information: Scleroderma & Raynaud's UK (SRUK)

Scleroderma & Raynaud's UK (SRUK) logo
  • Need

    Need

    At present over 45% of people living with scleroderma waited 3 years or more to get a diagnosis. We know that scleroderma is most active and does the most damage within the first two years. In order to improve quality of life we need to reduce diagnosis timescales.

    Solution

    We are working on a number of initiatives from education of GP's to developing digital tools. We aim to speed up the diagnosis process and ensure people living with scleroderma have access to the treatment and care they need.

  • Aims

    Aim 1

    To reduce the time to diagnosis


    Activities

    » Educate Health Professionals
    » Develop digital tools

    What success will look like

    Time to diagnosis is reducing, shown through our annual survey.


  • Impact

    Impact

    We will be improving the quality of life of people living with scleroderma.

    We will be using national data to identify whether the impact the condition has had had been limited due to earlier diagnosis.

    Risk

    Ensuring we have the right partnerships in place. We have already started our work to ensure that we are collaborating with the right organisations to make earlier diagnosis happen.

    Reporting

    Donors will receive updates via all digital channels and our impact will be shown in our Annual Report.

  • Budget

    Budget - Project Cost: £75,000

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      Amount Heading Description
      £25,000 Education Providing education to health professionals in particular frontline services i.e. GP surgeries
      £50,000 Technology Will be used on developing digital technology to speed up the diagnosis and referral process
  • Background

    Location

    The project will cover the UK

    Beneficiaries

    Families affected by scleroderma

  • Why Us?

    Why Us?

    We are the only charity dedicated to supporting people affected by Scleroderma & Raynaud's. We have the passion, ambition and determination to continue improving the lives of those affected.

    Read more about the Charity running this project.

    People

    Amy Baker

    Head of Engagement and Development will lead this project to ensure all stakeholders and staff are working towards the end goal of earlier diagnosis