Project information

Give a gift of support

The coming winter months can be particularly tough for families, patients and carers who have been hit by the devastation of a brain tumour. Help us provide vital emotional support so that nobody need face this time without help. Our services are free of charge and open to anyone who needs them.

December 2018 - February 2019

Charity information: The Brain Tumour Charity

The Brain Tumour Charity logo
  • Need

    Need

    Getting a brain tumour diagnosis can make you feel like your world has stopped. Sadly, 91% of people say that their tumour has affected their emotional and mental health.The difference between a brain tumour and a tumour in other parts of the body is the effect it can have on the mind, interaction with other people and physical ability. 84% of children and young people say their brain tumour had made them feel lonely. Brain tumours are a cancer of unmet need, which has been ignored for too long.

    Solution

    We’re here to help everyone affected by a brain tumour get the right support sooner. With a range of specialised services including our Information and Support Line, Patient Guide, Benefits Clinic, Live Chat, Online Information Days, Teenage and Young Adult Service and online communities, we have a service tailored to meet the needs of everyone. We believe everyone should have quick and easy access to the right information and support for them, at no cost.

  • Aims

    Aim 1

    People and families affected by a brain tumour are better supported and feel less isolated.


    Activities

    » Provide Info & Support Line, Patient Guide, Benefits Clinic, Live Chat, Online Information Days, Family Days, Teenage & Young Adult Service.
    » Reach out to people through newer services, like online chat, giving people multiple ways of contacting us.
    » Enable access to networks, local peer support groups or closed Facebook groups to support relationships with loved ones and the impact on daily life.

    What success will look like

    Increase the interactions we receive to our Support Services over the season by 10% and decrease feelings of isolation, anxiety and despair.


    Aim 2

    Empower people by increasing their knowledge about brain tumours and their impact.


    Activities

    » Deliver a personal and tailored support for each individual so they are better able to manage high levels of stress and anxiety.
    » Provide information and resources to help support adults and children mentally, physically and emotionally.
    » Provide information on patient rights, services and treatment they should be receiving and what to expect as well as finance and welfare benefits.
    » Raise awareness of research and clinical trials and provide access to knowledgeable and experienced professionals.

    What success will look like

    The feedback gathered from our community will help us understand how we have increased emotional and social/family well-being.


  • Impact

    Impact

    We will continue to build on our support services and ensure that we have the right support available at what can be a difficult time – whether you’re a child, young adult, parent, adult or carer, or have a low grade or high grade brain tumour and no matter where you live. We will continue to improve our services to ensure that we are meeting the needs of those personally affected and garnering the support of the community to join with us campaigning for much needed change.

    Risk

    There is a risk that the platforms which we use to deliver our Support Services crash or become inaccessible to our community. We have worked hard with our phone and internet providers over the last year to ensure that we maintain a continuity of services whether it’s through phone, online chat, email, text message or Facebook. We offer contact with the Charity in multiple ways so we don’t rely on a single method for giving support.

    Reporting

    Sharing successes will play an inherent role as we design bespoke communication plans for our major donors, the Big Give Champions and individual donors. We will use milestones to celebrate successes through public announcements and tailored communications such as letters and phone calls.

  • Budget

    Budget - Project Cost: £107,354

    Loading graph....
      Amount Heading Description
      £5,250 Printed materials A comprehensive suite of resources including information packs and fact sheets
      £92,498 Support Team Funding a dedicated and professional team
      £3,696 General Costs Training, software licences, postage, telecom
      £5,910 Professional fees Specialist benefits advice and assistance for people affected by brain tumours

    Current Funding / Pledges

    Source Amount
    Trusts and Foundations £29,016 Guaranteed
    Tribute (supporter) groups £5,302 Guaranteed
  • Background

    Location

    Brain tumours do not discriminate and can impact anyone at any stage of their life. We work across the UK to give Support and Information, entirely free of charge and using multiple platforms to ensure that anyone affected by this devastating disease can access the support they need. Support can be given through our Support Line, Live Chat, Email, Facebook, text message, Family Days, by letter and through our Benefits Clinic, printed materials or face-to-face.

    Beneficiaries

    Brain tumours are different from other cancers—they affect the part of the body that makes you the person you are. There are no known causes and brain tumours affect anyone, from children to grandparents. Over 102,000 people in the UK are living with the devastating impact of a brain tumour and it is estimated that 500,000 people are affected by a loved one’s diagnosis, all of whom can make use of our services.

  • Why Us?

    Why Us?

    We have been certified as a provider of high quality health and social care information through The Information Standard and have been supporting people for 19 years. It is reported that 60% of people living with a brain tumour receive no information on plans for their care, counselling or financial assistance. We provide clear, accurate, impartial, appropriately researched, accessible and up-to-date information to anyone affected and are the largest brain tumour charity globally.

    Read more about the Charity running this project.

    People

    Support And Information Manager

    Our Support and Information Manager oversees our entire support service, increasing our reach and maintaining the highest standard possible.

    Information And Support Team

    Our Information and Support Team are trained support providers, giving information and guidance to our community through all our platforms.

    Children And Families Team

    Our Children and Families Team offer in depth, bespoke support to families at a critical stage of childhood development.

Top tips for tackling isolation from our Young Ambassadors

£250

could provide 10 families with the immediate support and information they need following a diagnosis

During difficult times, knowing that I can just ring up and speak to someone has been a real lifeline. It has provide my children with reassurance also, knowing that I have somewhere I can turn instead of trying to cope on my own.

Service User