Project information

Give a gift of support

Christmas and the months that follow can be particularly tough for families, patients and carers who have been hit by the devastation of a brain tumour. Help us provide vital, emotional support so they don’t need to face this time alone. Our support is free of charge and open to anyone who needs it.

December 2018 - February 2019

Charity information: The Brain Tumour Charity

The Brain Tumour Charity logo
  • Need

    Need

    Over 80% of carers feel that their emotional well-being has been damaged and over a third of patients report feeling ‘severely isolated’. Christmas and the months that follow can be particularly difficult. Many people with a brain tumour may experience a loss of identity, cognitive impairment, and can be forced to abandon or change career. We need to be there in every way we can. Last winter we gave an additional 445 points of support, a 60% increase on the year before.

    Solution

    Your brain is the most amazing part of your body and the impact of a brain tumour mandates tailored support. We will deliver support through integrated services that are bespoke to each stage of a person’s journey. Our services help to improve the mental health and wellbeing through a high level of brain tumour specific understanding. “I'll never forget how lost I felt after being diagnosed and the support I received from The Brain Tumour Charity ”.

  • Aims

    Aim 1

    People and families affected by a brain tumour are better supported and feel less isolated


    Activities

    » Provide support through our Support Line, email, Facebook, face-to-face, text messages or phone support groups.
    » Reach out to people through newer services, like online chat, giving people multiple ways of contacting us.
    » Enable access to networks, local peer support groups or closed Facebook groups to support relationships with loved ones and the impact on daily life.
    » Last year we supported people 1,200 times during Christmas and the months that followed. This year, we will continue to provide support at every turn.

    What success will look like

    Increase the interactions we receive to our Support Services over the season by 10% and decrease feelings of isolation, anxiety and despair.


    Aim 2

    Empower people by increasing their knowledge about brain tumours and their impact


    Activities

    » Deliver a personal and tailored support for each individual so they are better able to manage high levels of stress and anxiety.
    » Provide information and resources to help support adults and children mentally, physically and emotionally.
    » Provide information on patient rights, services and treatment they should be receiving and what to expect as well as finance and welfare benefits.
    » Raise awareness of research and clinical trials and provide access to knowledgeable and experienced professionals.

    What success will look like

    The data gathered over the period will help us understand how we have increased emotional, functional physical and social/family well-being


  • Impact

    Impact

    We will continue to build on our support services and ensure that we have the right support available at what can be a difficult time – whether you’re a child, young adult, parent, adult or carer, or have a low grade or high grade brain tumour and no matter where you live. We will continue to improve our services to ensure that we are meeting the needs of those personally affected and garnering the support of the community to join with us campaigning for much needed change.

    Risk

    There is a risk that the platforms which we use to deliver our Support Services crash or become inaccessible to our community. We have worked hard with our phone and internet providers over the last year to ensure that we maintain a continuity of services whether it’s through phone, online chat, email, text message or Facebook. We offer contact with the Charity in multiple ways so we don’t rely on a single method for giving support.

    Reporting

    Sharing successes will play an inherent role as we design bespoke communication plans for our major donors, the Big Give Champions and individual donors. We will use milestones to celebrate successes through public announcements and tailored communications such as letters and phone calls.

  • Budget

    Budget - Project Cost: £107,354

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      Amount Heading Description
      £5,250 Printed materials A comprehensive suite of resources including information packs and fact sheets
      £92,498 Support Team Funding a dedicated and professional team
      £1,200 Training fees Training to ensure our team are fully equipped to assist and advise
      £882 Software licences Our Online Chat resource which enables people to easily and simply access support
      £309 Postage costs Delivery of our printed materials, we never charge those who need physical resources
      £1,305 Telecom costs Direct, one to one support with a skilled support team member
      £5,910 Professional fees Specialist benefits advice and assistance for people affected by brain tumours

    Current Funding / Pledges

    Source Amount
    Trusts and Foundations £29,016 Guaranteed
    Tribute (supporter) groups £5,302 Guaranteed
  • Background

    Location

    Brain tumours do not discriminate and can impact anyone at any stage of their life. We work across the UK to give Support and Information, entirely free of charge and using multiple platforms to ensure that anyone affected by this devastating disease can access the support they need. Support can be given through our Support Line, Live Chat, Email, Facebook, text message, by letter and through our benefits clinic, printed materials or face-to-face.

    Beneficiaries

    Brain tumours are different from other cancers—they affect the part of the body that makes you the person you are. There are no known causes and brain tumours affect anyone, from children to grandparents. Over 102,000 people in the UK are living with the devastating impact of a brain tumour and it is estimated that 500,000 people are affected by a loved one’s diagnosis, all of whom can make use of our services.

  • Why Us?

    Why Us?

    We have been certified as a provider of high quality health and social care information through The Information Standard and have been supporting people for 19 years. It is reported that 60% of people living with a brain tumour receive no information on plans for their care, counselling or financial assistance. We provide clear, accurate, impartial, appropriately researched, accessible and up-to-date information to anyone affected and are the largest brain tumour charity globally.

    Read more about the Charity running this project.

    People

    Support And Information Manager

    Our Support and Information Manager oversees our entire support service, increasing our reach and maintaining the highest standard possible.

    Information And Support Team

    Our Information and Support Team are trained support providers, giving information and guidance to our community through all our platforms.

    Children And Families Team

    Our Children and Families Team offer in depth, bespoke support to families at a critical stage of childhood development.