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Project information

Helping young kidney patients say "I can"

Over 3,500 children and young adults are living with kidney disease in the UK. We fund unique activity breaks for patients aged 9 to 30 offering respite from the day to day challenges they face. We know these trips can be life changing and want to continue to deliver and look to grow them in 2019.

January 2019 - December 2019

Charity information: Kidney Care UK

Kidney Care UK logo
  • Need

    Need

    Kidney disease is tough for every patient. But for young people it can be particularly challenging. Children are robbed of their childhood and young adults become isolated when all they want is to feel normal and fit in with their peers. Time lost through dialysis means school is often disrupted; restricted diets and fluid intake makes it hard to fit in with social activities; and as children become young adults they find themselves isolated in renal units surrounded by older patients.

    Solution

    The activity breaks we fund offer children and young adults some respite from their day to day lives and the challenges of living with kidney disease. They meet peers (who often become life-long friends) and share experiences, they receive support on self-managing medication and treatments and most importantly they have fun taking part in a variety of activities from which they gain confidence, new skills and a huge sense of achievement. They get the chance to feel ‘normal’ for a few days.

  • Aims

    Aim 1

    To reduce the feelings of isolation and hopelessness that young kidney patients feel.


    Activities

    » Provide the backdrop for young kidney patients from across the UK to meet, share experiences, support each other and form peer support networks.

    What success will look like

    Through feedback received from the participants themselves and volunteers and healthcare professionals who support the events. This will be collected during and after each break.


    Aim 2

    Provide support on self-management of conditions so they feel more in control of their illness.


    Activities

    » Run informal workshops providing information about kidney conditions, diet and exercise and what medications and treatments are available.

    What success will look like

    Through feedback received from the participants themselves and volunteers and healthcare professionals who support the events. This will be collected during and after each break.


    Aim 3

    Provide the opportunity to experience new activities, gain confidence and learn new skills.


    Activities

    » Offer a range of challenging outdoor based activities as well as workshops on applying for work or training, problem solving and confidence building.

    What success will look like

    Through feedback received from the participants themselves and volunteers and healthcare professionals who support the events. This will be collected during and after each break.


  • Impact

    Impact

    We know these breaks have a positive impact on the long term mind-set of young kidney patients. They leave with a renewed sense of purpose and feel more in control of their lives. This is shown, regularly, through the evaluation form, informal discussions and comments shared online after the trip, but also through the long term relationship we have with these patients (some of whom volunteer to help us plan and run future activity breaks).

    Risk

    We rely on the goodwill of volunteers, healthcare professionals and the hosting venues in order to successfully run these activity breaks every year. We plan well in advance and place great emphasis on staying in touch, working with and supporting our volunteers, healthcare professionals and venues. This ensures we hold long lasting relationships that minimises any risk to these activity breaks.

    Reporting

    In early 2019, we will share details of the breaks we have lined up. Following each activity break we will share feedback, photos and quotes from participants. A final round up of the year will be shared in late 2019.

  • Budget

    Budget - Project Cost: £30,000

    Loading graph....
      Amount Heading Description
      £30,000 Activity breaks This is amount we wish to raise through The Big Give
  • Background

    Location

    We welcome, and encourage, patients from all across the UK. In 2018, our activity breaks will take place at Ilam Hall in Derbyshire, Newgale Lodge in Pembrokeshire, Centre Parcs in Sherwood Forest, Fairthorne Manor in Hampshire and Hilltop Adventure Centre in Norfolk.

    Beneficiaries

    Young kidney patients, from 9-30 years of age, from all across the UK. We know families and carers also benefit, as the patients, with renewed purpose and confidence, are able to manage their conditions and view their illness in a more positive light.

  • Why Us?

    Why Us?

    For more than 40 years we have been the UK’s leading kidney patient support charity, providing practical, financial and emotional support for kidney patients and their families. We are the only kidney charity who fund and run these breaks for young kidney patients from across the UK.

    Read more about the Charity running this project.

    People

    Funders

    They will pledge to match any donations from the public

    Volunteers And Healthcare Professionals

    They support and run the activity breaks

    Kidney Care UK Staff

    They are the service delivery team

    Young Kidney Patients

    They embrace these opportunities