Project information

Information Leaflets

Good quality information about 22q11 Deletion Syndrome.

One year

Charity information: Max Appeal

Max Appeal logo
  • Need


    Ensure there is good quality information about 22q11 Deletion Syndrome (DS) to help families with the management of 22q11 DS.


    By producing documentation which is up to date and accurate.

  • Aims

    Aim 1

    Update all information for families using the updated Consensus Document for 22q11 DS, 2017.


    » Review and update Max Appeal literature, produced from the Consensus Document.

    What success will look like

    New Product literature will be available.

  • Impact


    Up to date, good quality information products will be available to families and professionals working with children affected 22q11 DS.


    having enough skilled resources to deliver the project.
    Timescales can be reviewed if the level of work is high or takes longer than expected.


    We will provide reports via our online newsletters and for larger donors we will update them of progress individually.

  • Budget

    Budget - Project Cost: £7,000

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      Amount Heading Description
      £2,500 Production of written material Labour costs of reviewing and updating the information leaflets
      £1,500 graphics updating of graphics
      £2,000 printing print costs
      £1,000 promotion attendance of professional conferences
  • Background


    Various Max Appeal offices


    Members of Max Appeal, families affected by 22q11 DS, professionals supporting those affected.

  • Why Us?

    Why Us?

    We have the knowledge, skills and professional contacts to ensure delivery of the project.

    Read more about the Charity running this project.


    Julie Wootton, Chair Of Trustees

    key product writer and specialist knowledge of 22q11 DS.

    Graphic Design Company

    produce graphics for products.

    Claire Hennessey

    Ensure products comply with quality standards and promote with professional associations.