Participating Project

Project information

The more we listen the more lives we save

Raising awareness of heart valve disease through photography competition, a condition that affect older people who mistake symptoms such as breathlessness, tiredness and dizziness as the natural signs of ageing! It is a treatable disease yet if ignored 50% die within one and half years,

November 2017 - June 2018

Charity information: Heart Valve Voice

Heart Valve Voice logo
  • Need

    Need

    Awareness of valve disease is stubbornly low, in fact only 3% of over 60 say that valve disease concerns them yet over 1.5 million over 60s have the disease which can kill within one and half years if ignored. A simple stethoscope check can detect and diagnose the disease yet 72% of over 60s claims that their doctor rarely or never checks their heart with a stethoscope. The studies mention come from a consultation with over 1400 UK over 60s and the OxValve prevalence study (2016).

    Solution

    Raising awareness of the quality of life after treatment is crucial to prevent thousands of unnecessary deaths each year. By delivering a photograph competition across the UK to celebrate life we can help to reach out to older people across the UK. An exhibition in the House of Parliament has been secured through Stuart Andrew MP and Caroline Noakes MP, so we can showcase all the photographs submitted and promote the lives of those treated.

  • Aims

    Aim 1

    Raise awareness of heart valve disease within the elderly community across the UK

    Activities

    » Deliver a national photography competition celebrating life after treatment
    » Hold a national photography exhibition in ten hospitals across the UK and a final exhibition in the House of Parliament

    Over 500 people will participate in the competition inspiring thousands of other patient and older people to understand the signs and symptoms of valve disease


  • Impact

    Impact

    By raising awareness of the disease Heart Valve Voice can influence policy makers to ensure we treat more patients. In the UK, we do not treat at the same levels as our European colleagues, and often patients present themselves too late at primary care meaning they have less treatment options. The photography competition is a perfect opportunity to raise awareness of the disease at a national level and make a lasting difference to an ageing population

    Risk

    The key risk is not promoting the project to a large audience. However, we have a track record of delivering national programmes, our Tackle Valve Disease programme in the Premier League saw us reach over 2 million people. We have scenario planned the project and have a stakeholder engagement strategy to ensure we can maximise our outreach, this includes MP, hospitals, schools and older people charities.

    Reporting

    We have an excellent track record of reporting to donors and can easily report quantitatively and qualitatively. We have robust monitoring and evaluations processes and can present our findings to a varied donors and varied intervals. We also have an independent evaluator.

  • Budget

    Budget - Project Cost: £10,000

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      Amount Heading Description
      £2,500 Photography masterclasses Design regional workshops to provide guidance for participants
      £2,000 Marketing design infographics and promotional material
      £2,000 Printing printing winning photographs
      £1,500 Transport transporting photographs across the UK
      £2,000 Radio Day Hosting a radio day promoting the project

    Current Funding / Pledges

    Source Amount
    Industry Funding £1,000 Guaranteed
  • Background

    Location

    This project will be UK wide, four head centre will host workshop training based at hospitals. We will target older people for this project.

    Beneficiaries

    There are over 1.5 million over 60s with heart valve disease, according to the OxValve Prevalence study this figure will rise to 3.3 million by 2056. Those that benefit from the project will be those suffering from the disease but also those at risk of the disease, their families and carers.

    Heart Valve disease is not linked to poor health outcomes, it can effect the most health people so our project is crucial in raising awareness in the elderly population.

  • Why Us?

    Why Us?

    Heart Valve Voice is the only UK heart valve disease charity, we sit on the Medical Technology Group, UK Tavi Trial and are currently supporting NHS England and NICE in designing new guidelines for valve patients. We have patient ambassadors across the UK and a network of healthcare professional including surgeons, cardiac nurses and cardiologist.

    We also contribute to the All Party Political Group for valve disease.

    Read more about the Charity running this project.

    People

    Wil Woan

    Wil is the CEO of heart valve voice and has delivered a number of national campaigns for valve disease. He also lead a European Valve Disease Network

    Chris Young

    Chairman of the charity and a leading surgeon at St Thomas hospital

    Victoria Toivaianen

    Communication Manager of Heart Valve Voice, 10 years of experience in hospital communication

    Pat Khan

    Patient Ambassador for the North of England, also sits on the British Heart Valve Society Board