Participating Project

Project information

AMEND Research Fund

AMEND aims to support research into the MEN conditions by providing up to £10,000 per year to enable medical researchers to supplement an existing project or pump-prime new research ideas. Research projects must be based in the UK and be specifically looking at MEN tumours.

March 2018 - March 2019

Charity information: Association For Multiple Endocrine Neoplasia Disorders

Association For Multiple Endocrine Neoplasia Disorders logo
  • Need

    Need

    Currently, the only effective treatment for the tumours occurring within the multiple endocrine neoplasia disorders is timely surgery. Radiotherapy and chemotherapy are rarely effective when disease has spread, as happens in cases of late diagnosis. As well as developing more effective treatments, or better understanding the diseases, more researchers need to be encouraged to undertake research into these rare disorders.

    Solution

    AMEND Research Awards have been in existence since 2012 when surplus funds have allowed, providing total funding of £75,000 up to 2015. Applications increased in number and strength during this time and we wish to continue to harness this forward trajectory. Many projects kick-started through AMEND funding continue to run, making important progress into better understanding the diseases and therefore increasing the potential for the development of new therapies. We aim to continue this impetus

  • Aims

    Aim 1

    To offer an AMEND Research Fund Award for 2018

    Activities

    » Raise £10,000 to fund a 2018 AMEND Research Award for one or more research projects into the tumours occurring in the MEN conditions
    » Inviting and judging applications to the AMEND Research Award 2018 with the help of an independent expert panel
    » Assessing the end of project impact from researcher feedback and disseminating to the patient community

    Raising £10,000 and awarding one or more Research Awards in 2018 with the help and advice of an independent expert medical panel


  • Impact

    Impact

    The aim of medical research is to improve patient care. This may be from an increased knowledge of how diseases behave, quality of life, or by developing new or more effective treatments, therapies or surgical techniques. The results of any research project funded will be fed back by the researcher, verified by an independent medical expert advisor, and a lay summary disseminated to the appropriate patient community.

    Risk

    1. irrelevant or bogus applications - mitigated by including the requirement on each application for supporting endorsement of the project and applicant by a senior medical figure within the research establishment.
    2. conflict of interest in judging process - we use an expert judging panel independent of any applying researchers to rank all applications according to relevance and probable impact of the project

    Reporting

    Donors will receive updates on any research projects funded, through electronic mail and social media, both at the time of the decision to award and at the conclusion of the research project.

  • Budget

    Budget - Project Cost: £10,000

    Loading graph....
      Amount Heading Description
      £10,000 Research Award One or more 2018 AMEND Research Awards
  • Background

    Location

    The administration of the AMEND Research Awards is undertaken at our head office in Kent. Awards are given only to projects based in the UK.

    Beneficiaries

    Our patient community of families affected by the rare genetic endocrine conditions, Multiple Endocrine Neoplasia (MEN) may benefit from advances made in the understanding of their diseases through research

  • Why Us?

    Why Us?

    AMEND is the only charity in the UK offering information and support to families affected by Multiple Endocrine Neoplasia and associated disorders. One of our aims is to encourage research into the conditions.

    Read more about the Charity running this project.

    People

    Jo Grey

    AMEND CEO and chief administrator of the AMEND Research Awards