Participating Project

Project information

Lymphoma Diagnosis Pack

Receiving a cancer diagnosis is very daunting. Lymphoma is a complex cancer with over 60 different subtypes each with their own treatment and prognosis. We want to produce 2000 diagnosis packs so patients have the information about their specific type of lymphoma and the support available

January 2018 - December 2018

Charity information: Lymphoma Association

Lymphoma Association logo
  • Need

    Need

    Every year 19,000 people are diagnosed with lymphoma which is a cancer of the lymphatic system. It can appear in almost any part of the body. Many lymphoma patients will never have heard of lymphoma, and they won't know their sub type or understand the specifics of their type of lymphoma. In a recent survey of lymphoma patients 34% had never heard of lymphoma before they were diagnosed. We want them to understand their type of lymphoma and be able to have informed conversations.

    Solution

    Our diagnosis pack will provide clear, concise information that is easy to digest. It will provide the patient with the information they need about their type of lymphoma and their treatment. These packs will be given out by healthcare professionals at the diagnosis meeting with the patient, so they can understand their disease after that meeting and throughout their cancer journey. They will have the information they need to empower them to have informed conversations with their medical team

  • Aims

    Aim 1

    To ensure by December 2018 100 Health professionals have diagnosis packs to give out to patients

    Activities

    » To design pack
    » To gain feedback from professionals and make modifications to the pack
    » To print 2000 packs
    » To distribute to Health Professionals

    We can track how many packs health professionals have ordered. We will follow up with them to get feedback.


    Aim 2

    To ensure by December 2018 2000 patients have received diagnosis packs

    Activities

    » To design pack
    » To gain feedback from patients
    » To make modifications based on patient feedback
    » To publicise pack through our website and health professionals

    We will track the number of patients who receive the packs, we will track contacts to our support services from patients who've received the packs.


  • Impact

    Impact

    We want lymphoma patients to know their sub type, It makes a huge difference to their understanding and expectations of their disease and treatment and empowers them when they are going through a particularly challenging time. It also tells them from the very beginning of their cancer journey that they are not alone - there is support and information specific to their type of lymphoma. We can measure patient knowledge of sub type and the difference this knowledge makes in patient surveys.

    Risk

    1. If patients and health professionals dislike the design the process could be delayed
    We are very experienced at producing publications and gaining feedback from our users.
    2.The project could be more expensive than intended but we are using tried and trusted suppliers.
    3. Funding is not received. This would delay the project.

    Reporting

    On our website and within tailored communications that donors have requested through our opt in process.

  • Budget

    Budget - Project Cost: £9,179

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      Amount Heading Description
      £6,000 Booklets 2000 x tailored disease specific publications
      £1,577 Cover 2000 x Diagnosis Pack cover
      £586 Typesetting Typesetting of booklets and publications
      £1,016 Management Costs Costs assosciated with completion of this project
  • Background

    Location

    The project will be coordinated at our head office in Aylesbury, we will be providing the pack to patients, Clinical Nurse Specialists and consultants at hospitals across the United Kingdom.

    Beneficiaries

    Health professionals and patients will benefit from this project. There are 125,000 people living with lymphoma in the UK and 19,000 are diagnosed every year. Lymphoma is the fifth most common cancer and the most common cancer in young people aged 15-24.
    In the first year of the project we intend to reach about 10% of those annually diagnosed.
    We know that patients are often bewildered at the time of diagnosis and require clear, straightforward information

  • Why Us?

    Why Us?

    We are the only Lymphoma specific UK charity. We are specialists in producing information about lymphoma and supporting people like Lynn, who says: ‘nothing compares with being given a cancer diagnosis. It was the worst day of my life. On a google search that same day, I found the Lymphoma Association and I honestly don’t know what I would have done without them.' We have an excellent reputation and are highly regarded among Health Professionals and patients for our award winning publications.

    Read more about the Charity running this project.

    People

    Lauren Lakritz

    Senior Editor

    Denise Harkin

    Managing marketing and publicity of the packs

    Sarah Thorn

    Managing fundraising for the project

    Patient Advisory Panel

    Giving feedback

‘Even to this day nothing compares with being given a cancer diagnosis. It was the worst day of my life. On a google search that same day, I found the Lymphoma Association and I honestly don’t know what I would have done without them'

Lynn