Participating Project

Project information

Fight Fatigue the Neuro Therapy Centre Way

Our project will help people with long term, degenerative neurological conditions like Multiple Sclerosis, Parkinson’s, Fibromyalgia & ME live well, maintain independence & carry on doing things they thought they would have to give up because of their condition.

January 2018 - December 2018

Charity information: Neuro Therapy Centre

Neuro Therapy Centre logo
  • Need

    Need

    Natural ageing makes us tired but clinical chronic fatigue is different & is a recognised symptom of neurological conditions. Exhaustion & inability to function physically or mentally follows even mild exertion. The effects are mental too; battling constant fatigue can cause depression, & social withdrawal is a coping strategy. Chronic fatigue feels like a life sentence, but effective Fatigue Management can be the difference between dependence & exclusion v independence & inclusion.

    Solution

    Our Fatigue Management programme addresses challenges facing people with neurological conditions by working with them to develop personal routines, incorporating both everyday activities & structured exercise, combining regular periods of rest. It will help them conserve valuable energy, deal with changes in their abilities, maintain/improve memory and remain independent for longer. “Fight Fatigue the NTC Way” will help transform both their own lives, & the lives of their families & loved ones.

  • Aims

    Aim 1

    To help individuals with a neurological condition remain independent.

    Activities

    » Analysing daily activities & adapting them to reduce fatigue and manage mobility issues

    Individuals are less reliant on Carers, and more able to participate in community life. They report they are both physically & mentally healthy through outcomes star method.


    Aim 2

    Help individuals deal with changes in their abilities resulting from their neurological condition.

    Activities

    » Support with writing, using a PC & organising routines, and helping to continue doing things like dressing & tying shoelaces, eating and drinking.

    Individuals are able to continue to carry out everyday activities & functions which they had thought they may have to stop doing due to the limitations of their condition - survey


    Aim 3

    Support people who may experience memory loss due to their neurological condition.

    Activities

    » Teach coping strategies for daily activities and ways of maintaining/improving memory.

    Monitoring and evaluation will demonstrate positive outcomes for participating individuals using standardised memory toolkits


    Aim 4

    Helping people with a neurological condition to conserve valuable energy

    Activities

    » Working to develop personal routines, incorporating both everyday activities and structured exercise, combining regular periods of rest in between.

    Individuals are able to participate in a range of activities which they might otherwise not be able to sustain reported through an through outcomes star method.


  • Impact

    Impact

    By helping people with long term neurological conditions continue both everyday activities and regular exercise, our project will support 60 people over 12 months, many of whom are 50+, to be less dependent on those around them, more confident about themselves & what they can do, more socially included and healthier both physically and mentally. It will help maintain independence & carry on doing things they thought they would have to give up. Demonstrated through range of measuring tools.

    Risk

    1. Lack of funding resulting in either reduced levels of delivery of the service or an inability to deliver the service at all.
    2. The resulting possible impact on the independence of individuals due to a reduced capacity to carry out every day activities caused by chronic fatigue and general health and wellbeing.

    To deal with these risks we have submitted a number of applications for funding to contribute towards the costs.

    Reporting

    Initial thank you for support.
    Formal annual monitoring report using results of the Outcomes star, annual survey and anecdotal evidence.
    NTC Newsletters highlighting the launch of the project.
    E-bulletins reporting on progress.
    Social media
    Informal updates

  • Budget

    Budget - Project Cost: £9,000

    Loading graph....
      Amount Heading Description
      £3,000 Occupational Therapists Involved in delivering 8 blocks of the 6 week programme
      £3,000 Counsellor Involved in delivering 8 blocks of the 6 week programme
      £1,500 Therapy Assistant Supporting OT, Counsellor and participants
      £750 Centre Manager Project Management
      £750 Communications Officer Marketing and Admin
  • Background

    Location

    The project will take place at the NTC premises in Saltney, Flintshire, where we deliver therapies and support to help manage the symptoms of neurological conditions and improve the quality of life of individuals.

    Established in 1985 by a group of people with MS, the NTC is a lifeline bringing together a disadvantaged group receiving little NHS support. Without the NTC they would struggle to stay independent & many would become isolated, vulnerable & at risk.

    Beneficiaries

    We support 600+ people affected by MS, Parkinson’s, ME & other neurological conditions from Cheshire, Wirral & N Wales. As well as supporting people with a condition we also support their Carers to both carry out their caring role and remain fit and healthy themselves. Over 60% are 50+; 35% are 65+; all are physically disabled or care for someone who is. As they age they become frail, vulnerable, & often isolated due to their condition. We give them a voice and ensure they are not ignored.

  • Why Us?

    Why Us?

    The NTC is the only centre of it’s kind regionally; it supports a group of people receiving minimal direct NHS support & what little there is is shrinking & occurs only either post diagnosis or in the event of an acute incident. We promote physical activity in everything that we do. By keeping fit & healthy individuals are encouraged to take a positive attitude towards the management of their condition, allowing them to take control of their lives, rather than their condition controlling them.

    Read more about the Charity running this project.

    People

    Jane Hall - Staff Member

    Counsellor - jointly deliver the project with the OT. Helping individuals to come to terms with their condition & deal with emotional challenges.

    Jackie Hughes - Staff Member

    Occupational Therapist who will jointly delivery the project and will help to develop personal routines incorporating both everyday activities & rest

    Arthur Norman - Staff Member

    Therapy Assistant - Support the counsellor and OT to deliver the project & supports the needs of people with a neurological condition who participate

    Jane Johnston Cree - Staff Member

    Centre Manager - responsible for overseeing the project, and ensuring progress is monitored and evaluated effectively and relayed back to donors.

£200

This will cover the cost of running the Fatigue Management Programme for one week.

“I feel like I’m dragging a tractor tyre around most days and simple things like cooking, cleaning and showering use huge amounts of precious energy. My condition means I have become unreliable as an employee and forced me to give up my career”.

Kat - service user