Project information

Information about Brain Inflammation

Encephalitis (inflammation of the brain) is an acutely serious neurological condition that affects around 6,000 people in the UK alone.
This project raises public awareness of the condition, saving lives and improving understanding for people living with the after effects of acquired brain injury.

February 2018 - February 2019

Charity information: Encephalitis Society

Encephalitis Society logo
  • Need


    A recent YouGov poll reveals that, despite encephalitis being a potentially life-threatening and disabling condition that strikes around 16 people EVERY DAY in the UK, only 20% of the population know what it is - reducing the urgency with which people seek medical attention or the importance placed on vaccination against preventable strains of encephalitis encountered abroad. Also, many report a sense of isolation post-encephalitis, with society having no understanding of the problems faced.


    We will launch an awareness campaign utilising print and digital media aimed at the general public and health professionals. The campaign will deliver a series of memorable key messages designed to ensure that encephalitis is more widely recognised and more fully understood. The campaign will tie in with a recent re-brand of the Encephalitis Society as “the brain inflammation charity”, the launch of a new website and World Encephalitis Day (22nd February).

  • Aims

    Aim 1

    Increase the general public’s awareness of encephalitis.


    » Commission the publication of a case study in media with general, widespread readership.
    » Targeted social media messages delivered via Facebook, Twitter and Instagram kick-started by a 'Thunderclap' campaign.
    » Publication of marketing materials.
    » App development - a simple smartphone app made available on iOS and Android platforms to reinforce key messages and provide vital information.

    Success will be improved public awareness of encephalitis as demonstrated by further YouGov poll, increased referrals to our support service and increases in membership.

    Aim 2

    Increase health professionals understanding of encephalitis and its outcomes.


    » Publication and targeted mail-out of NHS accredited information to key neurologists.
    » Publication and targeted mail-out of information to hospitals and other centres of rehabilitation.
    » Advertising in key professional journals and editorials.

    Understanding of encephalitis and its outcomes will be increased across health professionals - demonstrated by survey and rise in professional membership of the Society.

  • Impact


    We anticipate an increase in the percentage of the general population who can say with certainty that they know what encephalitis is - from 20% to 30%. This will be instrumental in aiding earlier diagnosis and swifter, more appropriate treatment - thereby saving lives and reducing the severity of outcomes in some circumstances. This will be demonstrated by another, commissioned YouGov poll to ascertain just how widespread awareness is. We also monitor referrals to our services.


    It is conceivable that a poor choice of case study would bring the Society’s reputation into disrepute or cause a public panic about the condition. However, we have over 17 years experience with working with clients and the media coupled with an expert understanding of the condition and how to manage the expectation of the public. We will also draw on the expertise our professional panel and board of trustees.


    We will update donors on the progress of the campaign through our website, social media and ‘Connect’ our quarterly newsletter as well as disseminating findings at our Annual Members Meeting and through direct mailings.

  • Budget

    Budget - Project Cost: £5,000

    Loading graph....
      Amount Heading Description
      £1,000 PR Case study commissioned and published.
      £500 Social Media Material commissioned for social media plus Thunderclap campaign.
      £500 Marketing Publication of information and campaign materials.
      £1,000 App Smartphone app development.
      £500 Neurologists Information mail-out to key neurologists.
      £500 Hospitals Information mail-out to hospitals.
      £1,000 Editorials Publication/advertising in key professional health journals.
  • Background


    UK wide - managed from the Encephalitis Society's North Yorkshire Office base.

    Encephalitis is indiscriminate, striking young and old alike and showing no respect for ethnicity, gender, social status or culture.


    The general public; our membership (approximately 10,000), the 6,000 individuals who are directly affected by encephalitis each, their family, friends, carers and associated medical professionals.

  • Why Us?

    Why Us?

    Formed in 1994, the Encephalitis Society has a long and distinguished track record of being at the forefront of the understanding of encephalitis, raising awareness of the condition and supporting those affected.
    There is a wealth of expertise within the organisation and our highly experienced board of Trustees is augmented by a 15-strong Scientific Advisory Panel of global experts. An independent evaluation of our Support service hailed it as:

    Read more about the Charity running this project.


    Dr Ava Easton - Chief Executive

    Dr Ava Easton, a world recognised authority on encephalitis, will oversee the content of the campaign and, ultimately, sign off on all messages.

    Andrew Pitt - Communications Coordinator

    With a wealth of journalistic experience and understanding of social media, Andrew will manage all aspects of the print and digital media campaign.

    Alina Etherington - Projects And Information Coordinator

    Originally from Romania where she practiced nursing for almost 10 years, Alina will oversee all aspects of published information.

    Carol Sampson - Clinical Neuropsychologist

    Carol will bring her considerable experience to bear in advising on all matters relating to recovery and rehabilitation post-encephalitis.