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Project information

Shine Brighter-Special education for children

Shine Brighter provides a unique specialist education service which aims to improve the education and learning experience for just over 3,000 children and young people affected by spina bifida and hydrocephalus. A greater understanding and support means more children can reach their full potential.


Charity information: Spina Bifida ● Hydrocephalus ● Information ● Networking ● Equality - SHINE

Spina Bifida ● Hydrocephalus ● Information ● Networking ● Equality - SHINE logo
  • Need


    There are barriers for those with the condition(s) being included and achieving at school. Physical aspects include incontinence management, accessibility, mobility & cognitive aspects. Language barriers make it harder to understand the meaning of sentences or stories, as well as keeping up with social chat. Other effects are eye-hand coordination. The conditions make it hard for parents & teachers to understand behaviour & attitude. Children can become isolated, lonely leading to bullying.


    Delivery of a range of sustainable life changing resources, helping children to be included & achieve at school provide a unique insight for educational professionals. School visits using Benny and Bella Bear who have the conditions helping explain complexities in an accessible clear way. The bears help children of all ages in an educational setting understand these complex disabilities. All will have a better understanding of life threatening conditions and bullying stopped before it starts.

  • Aims

    Aim 1

    Children will have an opportunity to 'Shine Brighter' and achieve more within and outside school.


    » Deliver a range of sustainable life changing resources to help children aged 2-18 with these conditions when they go to school or change schools.
    » Review, update & make resources available online.
    » Shine's Benny & Bella Bears, the bears with the conditions help to explain the impact of these conditions to other children, parents & professionals.
    » School visits conducted by a local support worker and Lead will be a central point of contact to inform our educational work in the community

    What success will look like

    Tracked access to expert centralised education, up to date related materials 24/7. Children will gain improve grades, take part in a range of activities, & bullying addressed.

  • Impact


    There will be an ongoing approach to the supply and delivery of education to children with these conditions until adulthood. Parents will have an increases expectation for their child's education, addressing equal access, rights & equality issues within education. Their future will be brighter and help them continue and go on to lead a more fulfilled and independent life as adults. Case studies and robust reporting & KPI's will demonstrate changes brought about by the delivery of the project.


    Lack of staff resources - Ongoing education for staff already on board, hiring experts and keeping informed and updated on medical breakthroughs. Robust hiring and vetting conditions.
    Demand- in areas where we do not have local staff based. Staff must be able to drive and in some cases will need to drive.
    Lack of funding- approaching a diverse set of fundraising activities beyond grants and trusts. All projects are scoped and specific elements have been packaged to fit specific audiences.


    Report when required or on twice yearly basis. The reports include impact reports, case studies, annual report, challenges encountered, KPI's, measure reports and newsletters. Invitations to special events with other finders of said project which include recognition and transparent reporting.

  • Budget

    Budget - Project Cost: £55,018

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      Amount Heading Description
      £33,621 National Education Lead FTE Delivering education to 3,000 schools
      £4,700 Other staffing costs Management, admin, Travel, Training & Recruitment
      £2,909 Other costs Publications, printing & Postage, subscriptions, telephone/utilities/laptop & IT, Venue hire/events
      £10,000 Education Resources & Material Design & delivery, leaflets, film used to explain the condition to children
      £1,020 IT Infrastructure/software & maintenance
      £2,768 Shine overheads Office costs, HR Payroll, staff support, facililties,

    Current Funding / Pledges

    Source Amount
    John Horniman's Children's Trust £5,000 Guaranteed
  • Background


    Although Shine provides support services in England, Wales and Northern Ireland, funding is sought specifically to deliver the education project to schools in Wales where children who have the conditions or their siblings attend.


    Children and young people between the ages of 2 and 18 in Wales, with the life threatening conditions of Spina bifida and/or Hydrocephalus, their parents, families, siblings, professionals, teachers and fellow pupils and peer groups.

  • Why Us?

    Why Us?

    SHINE (formerly known as ASBAH) was founded in 1966. Shine has over 50 years experience and are the experts in the field of Spina bifida and Hydrocephalus. Shine is the go to charity for those with the conditions, parents, professionals and future parents who have heard the news at the 20 week scan that their baby has the condition(s).

    Read more about the Charity running this project.


    Educational Lead

    To develop a range of sustainable life changing resources to help children aged 2-18 and network across Wales spreading awareness

    4 Support And Development Workers In Wales

    These staff deliver the programmes and educational face to face elements of the project in schools and work with parents and siblings in Wales