Fostering Social Capital
When I heard this phrase – and understood what it meant – a huge penny dropped in my mind. Our Society has a wealth of “social capital” that is as yet untapped. This social capital is our membership, the people who have been affected by this rare condition and know what it is like to live with the consequences. To foster this capital we need to put in place an information and support programme for those members who want to volunteer their unique experience to benefit others affected by this devastating condition.