Better palliative care for children in Belarus
Every ill child deserves the highest quality palliative care. In Belarus, HealthProm works with the only national provider of such care, the Belarusian Children’s Hospice. This project supports the expansion of their medical and social services for children (including orphans) and their families.
February 2018 - November 2018
Charity information: HealthProm
An estimated 3,000 children per year require palliative care for severe disabilities and terminal conditions in Belarus. The combined efforts of the independent Belarusian Children’s Hospice and limited Government services are not enough to ensure the provision of quality care for all children in need, particularly those most vulnerable living in orphanages. The need for such services is rising nationally, in part due to the long-term health consequences attributed to the Chernobyl accident.
Our project will develop the Belarusian Children’s Hospice’s capacity to: 1. Expand the reach of their services, particularly social support services, to children and families living beyond the capital city Minsk, 2. Improve outreach to and support of severely disabled and terminally ill children living in orphanages, and 3. Further develop their role as a key player working with the Government to improve nationwide provision of palliative and hospice care in Belarus.
Expand the reach of the Belarusian Children's Hospice's services to children and families in need.
Activities» Recruit an additional regional social worker to regularly visit children at home and in institutions, make assessments and develop ongoing care plans.
What success will look like
Success will be the provision of social support services to more children and families outside of Minsk.
Improve the care and support of severely disabled or terminally ill children living in orphanages.
Activities» Carry out regular social worker visits to orphanages to monitor and assess children requiring palliative care, and ensure they are not forgotten.
» Carry out visits to orphanages by a hospice doctor (paediatrician) to provide medical care to vulnerable children when required.
What success will look like
Success will be the provision of medical and social support to a highly marginalised and vulnerable population of children whose rights to basic services are frequently overlooked.
Strengthen the capacity of HealthProm & Belarusian Children's Hospice teams to help more children.
Activities» Provide regular training and one-to-one mentoring support to the Belarusian Children's Hospice team in project monitoring and evaluation.
» Provide regular technical support to the Belarusian Children's Hospice team in the areas of management, finance and human resources.
What success will look like
Success will be the strengthened capacity of both teams to provide more effective support and services to more children requiring palliative care.
The project will 1. Demonstrate the importance of making comprehensive palliative care services available in Belarus, 2. Raise awareness of the need to improve care for children in orphanages, 3. Strengthen the role of the Belarusian Children’s Hospice as a respected, internationally connected organisation able to participate in the development of national policy. We will demonstrate the project’s success by monitoring ongoing developments in service provision and related policy in Belarus.
The main risk is the withdrawal of political and government support for the development of palliative and hospice care in Belarus. This has been mitigated by maintaining continued collaboration, communication and transparency with the Ministry of Health and relevant departments. The international publication of an article in the Guardian (Vorobei, 2017) highlighting the plight of disabled children in Belarusian orphanages further motivates the government to maintain its commitment to this area.
We will provide detailed mid-term and final reports outlining achievements and progress against plans and timelines. We will also provide monthly e-mail updates highlighting key developments, case studies and 'stories of change' from beneficiaries.
Budget - Project Cost: £8,000Loading graph....
Amount Heading Description £3,000 Social Worker Salary for an additional regional Social Worker £800 Travel- Social Worker Travel costs for additional regional Social Worker to visit homes and orphanages £600 Travel- Hospice Doctor Travel and accommodation costs for hospice Paediatrician to visit orphanages £3,600 Technical Support Provision of additional technical support, mentoring & training to Belarusian team
Current Funding / Pledges
Source Amount European Commission £98,271 Guaranteed
Located in Eastern Europe, Belarus is one of the more politically conservative countries of the former Soviet Union. Population: 9.5 million. The Government provides many health services free of charge, however there are significant gaps in coverage and quality. Independent organisations remain the main providers of services for children with disabilities and their families, and the services they provide are often perceived to be of higher quality than those provided by the Government.
First and foremost, children living with severe disabilities and terminal conditions will benefit from this project through improved provision of palliative care services and social support. These children may be living at home or in orphanages. Families and carers of children requiring palliative care will also benefit from improved social support. Lastly, the team at the Belarusian Children’s Hospice will benefit from increased training, mentoring and technical support provided by HealthProm
HealthProm has over 30 years of experience working in the former Soviet Union to promote the health and social care of vulnerable children and women. We pride ourselves on acting as a catalyst to bring people and organisations together, develop the capacity of our local partners and support reforms in health and social care in the countries where we operate. We successfully manage multi-year projects in seven countries, offering us the skills and track record to carry out this project.
Read more about the Charity running this project.
Dr Pavel Burykin
In-country Project Manager responsible for the operational management of this project. Also a hospice paediatrician.
Ms Anastasia Borbut
Regional Social Worker who will be providing services including visits to homes and orphanages and developing plans of care.
Mrs Tanya Buynovskaya
Director of Operations and Project Manager at HealthProm. Responsible for project oversight and overall management.
At the age of 3, my son Vanya required expensive breathing ventilation equipment to be able to continue living at home. A nurse from the Belarusian Children's Hospice visited us at home and examined Vanya. The hospice was able to provide all of the equipment at no charge, which was like a miracle.