Project information

Guide for young people with lymphatic cancer

As the only UK charity specialising uniquely in supporting people affected by lymphatic cancer, we need to publish an essential booklet to help teenagers and young adults understand their illness and deal with the issues that they and their families may face.

3 months

Charity information: Lymphoma Association

Lymphoma Association logo
  • Need

    Need

    Lymphomas are the most common group of cancers in teenagers and young adults (15–24 years old) and every year in the UK, around 450 teenagers and young people are diagnosed. They will experience a range of powerful emotions throughout their treatment and beyond and need the right information to meet their very individual needs.

    Solution

    Our Young Person’s Guide to Lymphoma is written and illustrated specifically for young people and explains all about lymphomas, their treatments and side effects, in order to provide reassurance and alleviate their fear. It also includes sections on coping with feelings and looking after yourself. Copies are sent out by request to health professionals and families across the UK or downloaded from our website.

  • Aims

    Aim 1

    To update and produce a clear guide for young people with lymphoma, available in print and online.

    Activities

    » Print an essential guide for young people with lymphoma.

    Information Standard accreditation.
    Achieving a British Medical Association Patient Information Award.
    Recording the number of copies sent out in print and downloaded online.


  • Impact

    Impact

    This publication will enable young people with lymphoma to understand how it is treated, how to look after themselves and deal with the range of emotions they might feel. We seek ongoing feedback from readers and health professionals who hand out the booklet to patients through the use of surveys and anecdotal comments, to ensure that these objectives are being met.

    Risk

    If funding is not received the publication will not be printed.

    Reporting

    Donors will receive a copy of the publication and will be updated on outcomes at the end of a 12-month period and at any significant other times (eg. if an when the publication is successful in achieving a British Medical Association Patient Information Award).

  • Budget

    Budget - Project Cost: £10,000

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      Amount Heading Description
      £3,000 Printing Printing publication
      £7,000 Production Producing guide, research and evaluation
  • Background

    Location

    The booklet will be available throughout the UK by request via the Lymphoma Association helpline and website and will also be available to view and download online. In addition, it is also sent out by Health Professionals working with lymphoma patients and families in hospitals across the UK.

    Beneficiaries

    Young people up to the age of 24 with lymphoma, and their families. Every year in the UK, around 450 teenagers and young people are diagnosed.

  • Why Us?

    Why Us?

    We are the only UK charity uniquely dedicated to supporting people affected by lymphatic cancer and producing information is at the heart of all we do. We are experts in our field and are accredited with the Information Standard and have won numerous British Medical Association Patient Information Awards. We produce our information using nationally recognised guidelines, including the DISCERN tool for information about treatments and the NHS Toolkit for producing patient information.

    Read more about the Charity running this project.

    People

    Sarah Pollard

    Sarah is our Publisher. Her and her team of experienced medical writers work in close collaboration with medical advisers in this field.