Project information

Sickle cell - Behind closed doors

Sickle cell anaemia is a blood disorder that mainly affects the Afro/Caribbean communities.
Many have heard about it but don't know much about it because they see people when they are well enough to be seen.
No one knows or sees the anguish, pain and hospitalisations that goes on behind closed doors

January 2017 - December 2017

Charity information: Sickle Cell & Young Stroke Survivors

Sickle Cell & Young Stroke Survivors logo
  • Need

    Need

    The main problem is the ignorance surrounding Sickle cell anaemia.
    As a charity that has worked with children, young people and the families over the past 11 years, we find that young people are being hindered to share their illness and access care and support that they need.

    Solution

    By letting people understand what goes on behind closed doors, it will give a better understanding into the isolation, fears, anxieties, hospitalisations that these young people and their families face.

  • Aims

    Aim 1

    To share information about the life of those living with Sickle cell anaemia.

    Activities

    » Create a film of sickle cell - behind closed doors
    » Document the film and form evidence for further reserach

    We will approach the Community channel to air the findings.


  • Impact

    Impact

    Many stakeholders involved in children's and young peoples lives will have better understanding of Sickle cell and will help to improve services in education, the community and in Health and social care.

    This will be demonstrated through films that will be sown during outreach work with various stakeholders.

    Risk

    The risk is mainly of families leaving the project.

    We aim to have the project over subscribed to ensure there is a good quota that will ensure we have good data output.

    Reporting

    We will report through the Project report, Newsletter, Annual review and report.

  • Budget

    Budget - Project Cost: £0

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  • Background

    Location

    Beneficiaries

  • Why Us?

    Why Us?

    Read more about the Charity running this project.

    People