The place giving life in Malawi
Palliative care is thin on the ground in sub-Saharan Africa. Ndi Moyo Palliative Care Centre, Malawi is a beacon of hope for many patients with cancers & HIV/AIDS symptoms. The project will enable patients to receive high quality care whilst training other health workers to disseminate these ideas
January 2019 - December 2019
Charity information: Ndi Moyo
Malawi is one of the poorest 10 countries in the world with a high prevalence of HIV/AIDS and many related cancers. Radiotherapy is not available and most patients are diagnosed too late for cure. Palliative care coverage is patchy in sub-Saharan Africa and many die in pain or with anxiety as to the future of their children. In Malawi, centres have grown up allied to 2 main hospitals but many rural areas are without care and there is great need to train medical personnel in holistic care.
Ndi Moyo delivers patient-centred, home-based care to a 400,000 population of Salima and its surrounding rural area. It uses low cost methods, easily taught and replicated, with simple medicines, oral liquid morphine and nutritional support. It has links with other palliative care providers including UK hospices, runs training courses and takes students for practical placements so that they will be able to disseminate similar techniques, and increase the number of patients who can be reached.
Deliver high quality, low-cost palliative care to 30 child and adult patients for a year
Activities» Outpatient clinics where patients come for treatment and chemotherapy. New patients become friends in a place where they know support is available.
» Hospital & outreach clinics where patients further away can receive treatment without struggling to walk long distances or pay for a bicycle taxi.
» Day care, where patients can also receive counselling, eat a good meal, enjoy company and relaxation. & take part in income generating crafts.
» Home visits where the most ill patients are seen in their village, so that they can live out their last days pain free & peacefully with their family
What success will look like
We will demonstrate success by careful monitoring of pain and symptom scores and talking to patients and families of their experience of care. Many write or call us with thanks.
The project will increase local understanding of the fact that that there is always something that can be done, even when a patient cannot be cured. Amongst patients this can be measured in increased self-referrals to the centre as more come for treatment, and amongst health care workers by more effective palliative care delivery in their own units.
We also aim to improve the quality of palliative care across Malawi by being a centre of good practice and of training for health workers.
Nursing staff trained by the unit can lose interest or be transferred out of the region where they can no longer be supervised. We have dealt with this risk by more careful selection procedures and favouring those from mission, rather than government units, who are not subject to transfer. We have also employed a nurse-trainer to visit and support in their own places of work the nurses who have attended for training.
Donors will receive a twice yearly illustrated newsletter with full reporting of all activities at the centre and its staff including anonymised patient histories and updates about the supported outreach centres. Ndi Moyo has also expanded its website and Facebook page.
Budget - Project Cost: £16,000Loading graph....
Amount Heading Description £8,320 Staff Clinical care, teaching and support £3,840 Medical supplies Drugs, dressings etc £2,080 Vehicle costs Transport to patient homes & to outreach centres £1,760 Admin and upkeep Upkeep of clinic buildings, power, computers etc
Malawi is a very poor country with most of the population in rural areas some distance from health care facilities. Doctors are few, medicines in short supply and radiotherapy not available. HIV/AIDS prevalence is 10% and has resulted in a high chronic disease burden with increase in cancers often in young people. Many have died leaving their children unsupported, and for those that survive the health and education options are limited.
Our aim is to benefit patients in need of care, their families who are going through agonies of watching their loved ones in pain, and the medical carers who would like to help but lack the knowledge and resources to do so.
This starts with the population of Salima district, (over 400,000,) but extends, through training of staff, to other areas of Malawi. We hope to contribute to the steady growth of palliative care expertise and ethos in the country as a whole.
Ndi Moyo is the only freestanding hospice in Malawi & the only one able to offer holistic palliative care. We have now opened a new, purpose built clinic, with space for teaching to run alongside patient care. The prestigious Hospice Africa Uganda are helping us run a course for initiators of palliative care, so more patients will be able to benefit and more nurses learn. We dovetail into Malawi's developing palliative care programme with regular oncologist visits and medical student placements
Read more about the Charity running this project.
Lucy Kashindo Finch
Lucy and her husband Tony founded Ndi Moyo 12 years ago, after experiencing the hopelessness of a patient who cried out in pain for 3 days.