The ELF Mind and Body Service
Any cancer diagnosis is devastating, but the treatments for blood cancers, leukaemia, lymphoma, myeloma are particularly harsh and isolating. The Elimination of Leukaemia Fund (ELF) wants all families to have access to emotional and well being support to better enable them to manage.
January 2017 - December 2018
Charity information: Leukaemia UK
Families are torn apart by the devastation of a blood cancer diagnosis, and by the stress of the long hospitals stays in isolation often a long way from home.
We believe that the advances achieved in medical treatments need to be matched by much greater emotional and well being care for the patient and their loved ones. We believe they would cope better with treatments, and be more able to regain their normal life pathway with such support.
We aim to provide dedicated counsellor and clinical psychologist support specifically designed for haematological conditions.
The psychological impacts of blood cancer treatments are quite different to those of other cancers - there is no tumour to 'remove' from the body, and treatments involve the need for isolation from infection, making visiting and social contact very difficult for many weeks.
Better patient well-being during and after treament, and a return to normal life after treament
Activities» Design and set up a Mind and Body service at Kings College Hospital for all patients including those treated in the Kent or other district hospitals
What success will look like
Patient and staff feedback - all patients, families and staff complete feedback on the service
Evaluation - including a measure of the patient's ability to return to normal life
We will evaluate the service impacts over at least two years.
Measurements will include patient, nurse and counsellor evaluations.
Very important will be the measurement of the comparative patient recovery rates, and their ability to cope with treatments.
We expect the differences to be so significant that at the end of two years the NHS will choose to fund the service, and we will roll out the best elements of the service to other hospitals throughout the UK.
The main risk to the project would be delays in getting started. We know that Kings and the Maudsley Hospitals are committed to doing something in this area as art of the new Institute of Haematology being built on the Kings site.
This project does not need to wait for the physical building, but does rely on various parties working together.
The aim of the service is to build on existing good practice, such as we have already funded at Guys hospital, in the Teenage and Young Adult unit.
We will have access to the evaluations team at Kings as part of our total project costs, so will be able to provide regular independent evaluations on the work of the Service.
Budget - Project Cost: £160,000Loading graph....
Amount Heading Description £60,000 Clinical Psychologist Employ a dedicated clinical psychologist to lead on this work £40,000 Evaluation Our own independent evaluation will be key to monitoring our value for money and impact achieved £20,000 Outreach technology To allow the service to be delivered in all regional hospitals linked to Kings £40,000 Counsellor post The current dedicated counsellor is overwhelmed by demand for his services
Current Funding / Pledges
Source Amount ELF £100,000 Guaranteed Trusts and Foundations £50,000 Conditional
The project will be based at Kings College Hospital and cover the whole geography of Kings Health Partners , ie the whole of Kent and South East London
One person in the UK is diagnosed with blood cancer every 17 minutes. The catchment area of the new Institute will be 5.5 Million regional patients.
Every year Kings performs over 200 stem cell transplants, and each of these represents a family going through a major trauma. They are the largest bone marrow centre in Europe
ELF has a unique relationship with Kings - in 1988 the haematology service at Kings was set for closure, and ELF founders petitioned and raised money to save the service from closure. Today it is a world leading centre, which would not be there had it not been for ELF.
We funded the first haematology counsellor post for Kings, which is now a permanent role, and we also funded a clinical psychologist at Guys Teenage and Young adult centre, which effectively was the pilot for this new service.
Read more about the Charity running this project.
Executive Director at ELF, Angela worked with other partner charities and with Kings to identify the gap in supply of such services.
Professor Ghulam Mufti
Head of Haematology services at Kings, Professor Mufti is committed to establishing the Mind and Body service as a core element of haematology care