The ELF Mind and Body Service
Any cancer diagnosis is devastating, but the treatments for blood cancers, leukaemia, lymphoma, myeloma are particularly harsh and isolating. The Elimination of Leukaemia Fund (ELF) wants all families to have access to emotional and well being support to better enable them to manage the trauma.
We expect the service to launch in autumn 2016 and become part of standard treatments
The Elimination Of Leukaemia Fund Ltd
Families are torn apart by the devastation of a blood cancer diagnosis, and by the stress of the long hospitals stays in isolation often a long way from home.
We believe that the advances achieved in medical treaments need to be matched by much greater emotional and well being care for the patient and their loved ones. We believe they would cope better with treaments, and be more able to regain their normal life pathway with such support.
We aim to provide dedicated counsellor and clinical psychologist support specifically designed for haematological conditions.
The psychological impacts of blood cancer treaments are quite different to those of other cancers - there is no tumour to 'remove' from the body, and treatments involve the need for isolation from infection, making visiting and social contact very difficult for many weeks.
Better patient well-being during and after treament, and a return to normal life after treament
Activities» Design and set up a Mind and Body service at Kings College Hospital for all patients including those treated in the Kent or other district hospitals
Staff feedback and evaluation
We will evaluate the service impacts over at least two years.
Measurements will include patient, nurse and counsellor evaluations.
The main risk to the project would be delays in getting started. We know that Kings and the Maudsley Hospitals are committed to doing something in this area as art of the new Institute of Haematology being built on the Kings site.
This project does not need to wait for the physical building, but does rely on various parties working together
We will employ a researcher as part of our total project costs, so will be able to provide regular independent evaluations on the work of the Service.
Budget - Project Cost: £160,000Loading graph....
Amount Heading Description £60,000 Clinical Psychologist Employ a dedicated clinical psychologist to lead on this work £40,000 Evaluation Our own independent evaluation will be key to monitoring our value for money and impact achieved £20,000 Outreach technology To allow the service to be delivered in all regional hospitals linked to Kings £40,000 Counsellor post The current dedicated counsellor is overwhelmed by demand for his services
Current Funding / Pledges
Source Amount ELF £100,000 Guaranteed Trusts and Foundations £50,000 Conditional
The project will be based at Kings College Hospital and cover the whole geography of Kings Health Partners
One person in the UK is diagnosed with blood cancer every 17 minutes. The catchment area of the new Institute will be 5.5 Million regional patients.
Every year Kings performs over 200 stem cell transplants, and each of these represents a family going through a major trauma. They are the largest bone marrow centre in Europe
ELF has a unique relationship with Kings - in 1988 the haematology service at Kings was set for closure, and ELF founders petitioned and raised money to save the service from closure. Today it is a world leading centre, which would not be there had it not been for ELF.
We funded the first haematology counsellor post for Kings, which is now a permanent role, and we also funded a clinical psychologist at Guys Teenage and Young adult centre, which effectively was the pilot for this new service.
Read more about the Charity running this project.
Executive Director at ELF, Angela worked with other partner charities and with Kings to identify the gap in supply of such services.
Professor Ghulam Mufti
Head of Haematology services at Kings, Professor Mufti is committed to establishing the Mind and Body service as a core element of haematology care