Research reveals stress as the single biggest factor affecting the quality of life for autistic people and their families causing significant impact across all aspects of their life. We will develop a microsite and information providing tools and effective strategies for dealing with stress.
January 2017 - December 2017
3.5 million families in the UK are affected by autism. Autism is characterised by communication difficulties using language effectively and forming relationships with other people. Stress is the single biggest factor affecting quality of life for autistic people and their families, causing significant impact across all key aspects of their life. Despite wide recognition that autistic people are particularly susceptible to stress, there is little research or information on coping strategies.
We are holding a Stress Summit to listen to autistic people, their families as well as leading scientists and researchers. We will explore knowledge gaps and identify research priorities. We will then commission research which will identify practical tools and strategies for dealing with stress. Our project will be to develop and produce a Microsite and a series of Essential Guides aimed at providing the autism community key tools and strategies to deal with stress
Effective Strategies for dealing with autism
Activities» Hold a Stress Summit to identify gaps in research and the vital next steps
» Commission research to evaluate practical strategies to deal with stress for everyone living with autism
Referencing of our research on Stress, and information materials in new research
Number of visits to Stress Microsite
Number of Essential Guides downloaded
Parents will become less stressed as they are able to recognise the trigger points
Activities» Develop a Stress Microsite (specific website)
» Develop and disseminate Essential Guides on Stress
» Run a series of Q & As with acknowledged professionals in the autism community for families of people with autism and people with autism
Number of Essential Guides downloaded
Numbers accessing Q & As
Feedback from families of people with autism
Professionals will be less stressed and have more confidence in working with autistic people
Activities» Promote and develop specific Essential Guides for people working with autism
Number of professionals referencing our materials
Number downloading information materials
Feedback from professional working with people with autism
Ensure people with autism and the people that work with them are aware of these vital materials
Activities» We will launch a media campaign and press release, publicise in relevant professional magazines and publicise on relevant websites
Numbers accessing the information website
Numbers downloading materials
Positive feedback from parents
Follow-up Summit later on in year
Less stress for people with autism, their parents and the professionals who work with them will enable coping with stress better by recognising trigger points and developing coping strategies. In the longer term this will provide health and well being.
Not attracting a wide and large enough pool of attendees at Stress Summit - will ensure that the invited audience has plenty of notice and publicity
Difficulties in getting funding for research which will slow the project down - We will plan research in easily fundable stages, so we can begin work more quickly.
People with autism and their families not knowing about or accessing the information - We will run an effective awareness campaign and regular promotion with relevant charities and media
We will send a monthly email that will detail ongoing and forthcoming activities as well as progress on the project generally and what has been achieved so far.
Provide a link on our website leading to the microsite and information materials
Raise awareness through social media
Budget - Project Cost: £25,000Loading graph....
Amount Heading Description £10,000 Microsite Populating microsite, design and IT support £13,000 Essential Guide 5 essential Guides - for parents, people with autism, professionals working with them £2,000 Awareness campaign Media launch and campaign, email publicity to database, design and IT and hard copy design
Nationwide - all of UK and world wide. People with autism and their families cross all socio-economic boundaries.
700,000 people with autism in the UK, 1% of population of world has autism and they can and do access our site and materials. Parents of people with autism affecting 3.5 million families in the UK.
Professionals working with people with autism
Policy makers and politicians
Research Autism is the only charity exclusively dedicated to research and into treatments and therapies in autism. We ensure that people with autism are consulted when we are planning research or information materials. We have the active support of some of the world's leading figures in autism and research.
We are the only charity it has the NHS Accrediation for our information services
Read more about the Charity running this project.
Dr Richard Mills . Research Director Of Research Autism
Ccommissions the research, lead the research steering group and ensure that the outcomes are acted on.
Bernard ~Fleming, Information Services Manager
Evaluate research in order to write the information on the website as well as the information materials
Digby Tantam, Chair Of Research Autism's Scientific Advisory Group
Will make decisions on who conducts research, research programme and be part of the research steering group
The monthly cost of our information service - we receive no government or statutory funding
Stress can make me feel near suicidal. Exchausted. Inadequate.