Funding a Palliative Care Support Worker
To enable terminally ill patients to die at home if they wish. PCSWs are different from other carers as they have palliative care training and the backup of the Hospice specialist teams. They provide care for patients and support families with practical help and information.
Charity information: Isabel Hospice
To increase the confidence of the patient and family when dealing with issues that may arise whilst caring for a dying patient at home. By providing hands on care and sharing techniques with family members, the PCSWs are usually able to prevent unnecessary, distressing hospital admissions
Their specialist palliative care knowledge and ability to respond quickly mean the PCSWs can help families and patients increase their confidence and reduce their anxiety when caring for their loved one, enabling them to be cared for at home at the end if that is what they want. Families are also comforted to know that they are carrying out their loved one’s wishes.
primarily to support those patients who wish to remain at home for end of life care
Activities» Offer rapid response using their own palliative care training, backed up by Isabel Hospice specialist teams, ensuring a robust, professional service.
» Prioritising the needs of the patients and contacting families to offer telephone advice and support and to arrange visits where appropriate
» Talking with family members & loved ones. This is essential, giving carers the confidence & support they need to carry on end of life care at home.
» Support to the family as a familiar face immediately after the death and carry out last offices for the patients prior to the funeral director coming
What success will look like
By comparing the actual place of death with the one stated in the Advance Care Plan prepared by the patient.
It will provide end-of-life care at home for those patients who have chosen their home to be their preferred place of care.
It will prevent carer breakdown.
It will avoid unnecessary hospital admissions.
All these results help families through their bereavement, knowing they were able to meet their loved ones dying wishes. This will be evident from feedback received from carers
1. Although a patient may wish to die at home, this may not always be possible when the time arrives due to carer breakdown. This will be dealt with by discussions with the patient (if possible) and the family. Each situation is unique and we treat each person as an individual.
2. Our In-Patient Unit will be relocating in November 2016 for around 6 months. Demand may increase for our Hospice at Home service. We will be transfer staff from our IPU to Hospice at Home to cover any shortfall
Donors will receive regular email updates about the work of the Palliative Care Support Workers with testimonials from the families about how their care has made a difficult time, a little easier. We will also use social media to update the general public
Budget - Project Cost: £20,000Loading graph....
Amount Heading Description £20,000 Salary Palliative care support worker
Current Funding / Pledges
Source Amount NHS £6,500 Conditional charitable income £13,500 Conditional
We provide free palliative care and support for patients and their families living with cancer and other life-limiting illnesses such at MND, end stage renal conditions, end stage heart conditions, respiratory conditions or other neurological conditions, throughout eastern Hertfordshire. The population we serve is almost 350,000 people covering around 254 square miles. We have cared for local people since 1982.
Both the patient and their family will benefit.
Our patients are people who have been given a terminal diagnosis for conditions such as cancer, end stage renal, heart, respiratory or heart conditions and terminal neurological conditions such as motor neurone disease.
We also spend time talking with family members and loved ones. This essential support gives carers the confidence and motivation they need to carry on, helping to prevent carer breakdown and emergency hospital admissions.
We have been providing free specialist palliative care to local people for over 30 years and have a wealth of experience and specialist knowledge.
Over the years, this unique role has developed, working very closely with other health care professionals to prevent unnecessary admissions to hospital, and to manage rapid discharge from hospital so that patients’ wishes to die at home can be met. No other agency can provide this level or quality of support at such short notice.
Read more about the Charity running this project.
Tina is our Hospice at Home Lead.