PIPS: support and therapy for babies and children
PIPS is a new and unique service in the UK, run by PACE, providing assessment, therapy and support for babies and toddlers (age 0 to 3) who suffer brain injuries before/during birth, or who are at risk of such a diagnosis. We also support parents too at this important and vulnerable time
December 2015 - December 2016
Charity information: Pace
There are precious few services for children at risk of disability or other development needs when they leave hospital and begin life. Mums and Dads need support and advice at this vulnerable time, too. At PIPS, PACE offers families the chance to receive specialist advice and support. Early intervention like this is proven to be critical in achieving better long-term outcomes for disabled and development-delayed children.
We believe PIPS is the first service of its kind in the UK. We offer specialist assessments for babies as young as just a few weeks, advice for parents, clinics to support sleeping and feeding (which can be problematic and even dangerous for these little children), peer group support for families, and build parents' skills and confidence to meet their child's specific needs. We also believe that this can become a model of excellent early intervention that will set a new standard for the UK.
To help 75-100 babies/toddlers and their families in 2015.
Activities» Intensive therapy and assessment sessions for babies and their parents
» Feeding and sleeping clinics. These can be difficult and dangerous problems for brain-injured children, and cause great distress for whole families.
» Baby massage clinics to help babies and parents to bond and help our staff assess their needs.
» Offer families the chance to meet others in similar situations for support, advice and community.
We track and monitor the progress of each child that joins the PIPS service carefully so that we can demonstrate progress to families and also document the impact or our services.
We believe that our services will have both short-term and long-term benefits for both children and families alike. We gather info from all our families about the benefits of PIPS and other PACE surveys. e.g through an annual survey. We are also compiling data to demonstrate clearly that the PIPS service can be a model of excellence for early intervention services that raises standards across the whole UK.
Services like this have not previously developed in the UK partly because no statutory funding is available, a chicken-egg situation that we are determined to break. Therefore the PIPS service is a major fundraising priority for PACE.
We are also working hard to develop better referral pathways for families from NHS, other health practitioners etc. by constantly developing the marketing of the PIPS service.
We will produce a report at the beginning and end of 2015 to show what we have achieved, and tell some of the stories of the children and families that we have been able to help, throughout the year.
Budget - Project Cost: £215,600Loading graph....
Amount Heading Description £143,000 Direct staff costs 4 therapists (1 speech & language, 1 physio, 2 OT), 1 PT administrator, and £8,000 for training £25,000 Family support Including statementing advice, and counselling. £26,000 Premises & Equipment Includes therapeutic, assessment and soft play equipment £21,600 Overheads Marketing (web and materials), HR, finance and administration costs (10%)
Current Funding / Pledges
Source Amount Trusts & Foundations grants £127,500 Guaranteed
The PIPS project is based at PACE's new Early Years & Independence Centre in Aylesbury, Buckinghamshire, a new £4.5million development
The PIPS service is open to all families with a child with a disability or developmental need who are referred by NHS and other health practitioners (or who self-refer) who wish to use the service, subject to initial assessment by the PIPS team. Historically, our families come to PACE from Buckinghamshire, all the surrounding counties and (increasingly) North & West London boroughs, and from all socio-economic backgrounds. We anticipate this will broadly be the case for PIPS families too.
There are no similar services in the UK (as far as we know) offering intensive, integrated and specialist services of the kind available at PIPS for these very young and vulnerable children and their families. PACE has 25 years of experience of working with children with development delay and motor disorders such as cerebral palsy, and we feel we are uniquely placed to develop these new services, and to demonstrate their effectiveness in transforming the lives of these children.
Read more about the Charity running this project.
Clincial Lead - Occupational Therapist. Lindsay has worked in the field of child Health for 30 years and recently joined PACE from the NHS.
Helen has been withPACE since 2004.. She is now PACE's clinical lead physiotherapist and works primarly in early years intervention.
Laurel is PACE's clinical lead speech & language therapist, with 25 years of clinical expertise with children with motor disorders and their families.
Julia is an occupational therapist specialising in the assessment and treatment of children with motor disorders and sensory processing difficulties.