The place giving life in Malawi
Palliative care is thin on the ground in sub-Saharan Africa. Ndi Moyo Palliative Care Centre, Malawi is a beacon of hope for many patients with cancers and HIV/AIDS symptoms. The project will enable patients to receive high quality care whilst training other health workers to disseminate these ideas
January 2017 - December 2017
Charity information: Ndi Moyo
Malawi is one of the poorest 10 countries in the world with a high prevalence of HIV/AIDS and many related cancers. Radiotherapy is not available and most patients are diagnosed too late for cure. Palliative care coverage is patchy in sub-Saharan Africa and many die in pain or with anxiety as to the future of their children. In Malawi centres have grown up allied to 2 main hospitals but many rural areas are without care and there is great need to train medical personnel in holistic care.
Ndi Moyo delivers patient-centred, home-based care to a 400,000 population of Salima and its surrounding rural area. It uses low cost methods which are easily taught and replicated, with simple medicines, oral liquid morphine and nutritional support. It has links with other providers of palliative care, including UK hospices, and takes students for practical placements so that they will be able to disseminate similar techniques, and increase the number of patients who can be reached.
Deliver high quality, low cost palliative care to 40 child and adult patients for a year
Activities» Outpatient clinics where patients come for treatment and chemotherapy. New patients become friends in a place where they know support is available.
» Hospital & outreach clinics where patients further away can receive treatment without struggling to walk long distances or pay for a bicycle taxi.
» Day care, where patients can also receive counselling, eat a good meal, and have chance for company and relaxation.
» Home visits where the most ill patients are seen in their village, so that they can live out their last days pain free & peacefully with their family.
We will demonstrate success by careful monitoring of pain and symptom scores and talking to patients and families of their experience of care. Many write or call us with thanks.
Contribute to the training of health care workers in Malawi by providing courses and placements.
Activities» Training courses at different levels, from volunteers to nurses, are held to teach the initiation and practice of palliative care.
» Clinical placements are offered to learn patient care in action while accompanying our own skilled staff.
» Regular meetings are held, allowing outside staff to join in clinical presentations, discussions and journal clubs.
We will monitor progress of trained personnel in their own health units and the quality of care which they able to deliver. Staff support is given and combined clinics undertaken.
Support Vulnerable Children whose lives are affected by their parents’ cancer.
Activities» Assessment visits talking directly to children and their carers to estimate ongoing needs during the illness and after the death of their parents.
» Provision of essentials: sleep mats, soap, mosquito nets, school uniforms and where necessary school fees, often to children in extreme poverty.
» We undertake follow up visits at home to monitor progress, to ensure that children are supported.
We arrange regular follow up visits to talk to affected children, monitoring their welfare, nutrition, access to health care and education.
The project will increase local understanding of the fact that that there is always something that can be done, even when the patient cannot be cured.
Amongst patients this can be measured in increased self-referrals to the centre as more come for treatment, and amongst health care workers by more effective palliative care delivery in their own units. The hope is to have effective ongoing care in 2 local hospitals and 10 nearby health centres in Salima district.
Nursing staff trained by the unit can lose interest or be transferred out of the region where they can no longer be supervised. We have dealt with this risk by more careful selection procedures and favouring those from mission, rather than government units, who are not subject to transfer.
External support, e.g. from UK hospices, has refreshed our teaching and increased our enthusiasm.
Donors will receive a quarterly illustrated newsletter with full reporting of all activities at the centre and its staff including anonymised patient histories and updates about the supported outreach centres.
Budget - Project Cost: £16,000Loading graph....
Amount Heading Description £7,520 Staff Clinical care, teaching and support £1,920 Medical services Drugs, dressings,nutritional support £960 Vulnerable Children programme Assessment, mosquito nets, educational support £3,440 Vehicle costs Transport to patient homes & to outreach centres £2,160 Administration & maintenance Upkeep of clinic buildings, power, computers etc
Current Funding / Pledges
Source Amount Family Cox £5,000 Guaranteed Kate Neil £3,000 Guaranteed
Malawi is a very poor country with most of the population in rural areas some distance from health care facilities. Doctors are few, medicines in short supply and radiotherapy not available. HIV/AIDS prevalence is 10% and has resulted in a high chronic disease burden with increase in cancers often in young people. Many have died leaving their children unsupported, and for those that survive the health and education options are limited.
Our aim is to benefit patients in need of care, their families who are going through agonies of watching their loved ones in pain, and the medical carers who would like to help but lack the knowledge and resources to do so.
This starts with the population of Salima district, (over 400,000,) but extends, through training of staff, to other areas of Malawi. We hope to contribute to the steady growth of palliative care expertise and ethos in the country as a whole.
Ndi Moyo is the only freestanding hospice in Malawi and the only one able to offer holistic palliative care. We will soon open a new, purpose built clinic, with space for teaching to run alongside patient care. The prestigious Hospice Africa Uganda are helping us run a course for initiators of palliative care, so more patients will be able to benefit and more nurses learn.We dovetail into Malawi's developing palliative care programme with regular oncologist visits and medical student placements.
Read more about the Charity running this project.
Lucy Kashindo Finch
Lucy and her husband Tony founded Ndi Moyo 10 years ago, after experiencing the hopelessness of a patient who cried out in pain for 3 days.
Linly, the first Malawian Clinical Lead, guides the staff and sets an example of hard work as she misses many a meal break to admit new patients.
Chimwemwe our administrator, who is in quiet control of staff and budget, will ensure no administrative hitches
The drivers, Helix and Manuel deliver us safely over river beds and rutted roads to isolated villages where patients need us.
will pay for a patient's care for a month
May Ndi Moyo continue as 'the place giving life'