Supporting Children with Arthritis
SNAC are aiming to connect all children with arthritis in Scotland through the provision of educational and fun events. We run a family weekend in Crieff every year. Details of the weekend can be found on YouTube through searching SNAC family weekend. this event costs just under £20,000 every year.
Scottish Network for Arthritis in Children (SNAC)
Arthritis in children is relatively rare, approximately 1 in 1000 children are diagnosed with arthritis. When a family receives the diagnosis of Juvenile Idiopathic Arthritis (JIA) it can be a very lonely and isolating time with many uncertainties about treatment and the future. Most children spend many months undergoing treatment until they can get established joint control and effective pain relief. Arthritis in children is viewed a chronic illness.
The family weekend at Crieff brings together children diagnosed with arthritis (and their families). It gives them the opportunity to meet other families in similar situations. Education is provided in a fun relaxed environment and the families learn tips and information to equip them to learn to cope and live with childhood arthritis (JIA) fundamentally improving the experience of JIA for the family.
To provide a family weekend for 20 children diagnosed with arthritis and their families.
Activities» Provide a weekend of activities (educational and fun) for 20 children affected by arthritis, their siblings and their parents/ carers.
Provide an residential weekend in Scotland in April 2015 for 20 families with educational content provided by the Scottish paediatric rheumatology healthcare professionals.
The attendees will be asked to complete an extensive evaluation form which will capture a knowledge shift from the weekend.
Success will be measured in the number of families attending the weekend indicating the demand for such an event. This is our 6th family weekend, over 100 families in Scotland have benefited previously
The families are all asked to commit to the weekend by paying a small fee of £50 per family. (we have a waiting list of families)
There might not be enough hospital professionals to provide the educational content.
Regular contact and early programme with named professionals responsible for the content.
We will provide an expensive report following the weekend including the evaluation and evidence of knowledge shift. This will be posted on our website and social media sites.
All suggestions for improvements will be as in years previously acted on .
Budget - Project Cost: £18,000Loading graph....
Amount Heading Description £18,000 Crieff hydro charge total hotel bill for running the event including all food, accommodation and various activities.
Crieff Hydro, Scotland. A central hotel in Scotland which has accommodation for over 100 people including family rooms that can sleep a family of 6. Crieff Hydro hotel also provides plenty of meeting and breakout rooms so that we can cater for many workshops of varying ages in different rooms. They have an excellent play area for the children when they are not in their educational sessions.
the whole family of a child affected by juvenile arthritis. A diagnosis of arthritis affects the whole family. Our weekend also provides educational sessions for the siblings and parents. This means the whole family will have increased understanding of what JIA means and will have a greater knowledge of how to 'cope' and live with JIA.
Because No other charity in Scotland is currently looking after children with JIA and we have the support from the Scottish Peadiatric and Adolescent Rheumatology Network, healthcare professionals who give up their time to come to the weekend and provide the educational content.
Read more about the Charity running this project.
Trustee, charity co- founder and charity liaison. Sharon has attended every weekend and has vast experience of communicating with JIA families.
Trustee, co-founder and secretary. Tracy has excellent organisationals skills and will be responsible for the programme
Chair of SNAC. Michael will be responsible for delegation of the various volunteers. He also has expertise in IT and will be responsible for all IT.
Joyce Davidson Patron
Joyce is a paediatric rheumatologist who will be responsible for ensuring there is sufficient healthcare experts to cover the educational content