Headache diary app
To launch an electronic headache diary 'app' for migraine sufferers. A key aspect of diagnosing migraine and seeking appropriate treatment is by sufferers keeping a diary. Current diaries are paper based but by making them electronic they will be a more useful tool for patient, Dr and for research.
6 months development once funding secured, ongoing updates.
Charity information: National Migraine Centre
Currently our patients fill these in on paper templates that we provide, and this is also the case across the NHS: GPs regularly recommend our paper diaries to patients. These are time consuming to fill in, and carrying around bits of paper is not conducive to our modern lives. They do not offer the patient any other added benefits ie. education, alerts when they have taken too much mediation and the data cannot be searched or analysed to see patterns that could help with diagnosis and research
An ediary will be quick and easy to fill in, it will be accessible at all times via a smartphone or computer. The system will allow doctors access to up-to-date data on individuals but also in a more general sense, analyse this data for trends to improve future patient care.
Make managing migraine more convenient and empower them to self manage their condition.
Activities» Create a user-focussed e-headache diary app.
Testing with current patients to make it as 'user friendly' as possible before launching. Sending questionnaires to users of the diary once launched.
Save time in consultation and increase quality and accuracy of diagnosis and treatment.
Activities» By consulting our own doctors to ensure the app is collecting the best quality data from the users.
Same as above essentially, but testing with NMC doctors and GPs we know before launching. Sending questionnaires to doctors once launched to check the data fed back is useful.
Data to be searchable & readily available for research, helping advance knowledge
Activities» Build the diary software with a back-end in mind where all diary data is stored (anonymised) and searches/reports can be made.
If we can run reports to spot trends we hope to be successful inattracting research study income to use the data, and improve treatment as a result.
Diary will be an excellent PR tool. Increased awareness means we can treat more people
Activities» Promote the diary online, with healthcare professionals and in the press to get maximum coverage when we launch, so that the maximum can benefit.
We aim that NMCs diary will be THE diary for UK migraine sufferers. We will analyse take up, and drop out rates. Success would be users keeping the diary for at least 4 months.
- Increased demand for appointments at NMC (we monitor appointment requests)
- Increased knowledge of the condition, and effective treatments (any new studies as a result would demonstrate an improvement)
- Increased quality of life for patients suffering with migraine (we monitor our own patients with an EQ5d quality of life tool, so can analyse trends).
Progress being made will be shared with our mailing list and if suitable the medical or general press.
There is a risk that the diary could be swamped with users, however we will approach a developer who can support such upsurge in demand if necessary (1 in 10 of the UK population are sufferers so there are potentially a huge number of users).
We will keep donors informed of the progress of the project regularly throughout the 6 month development process and invite those who are sufferers themselves, to test out and feed back on the diary before it is launched. Once launched we will send bi monthly reports via our newsletter.
Budget - Project Cost: £35,000Loading graph....
Amount Heading Description £15,000 Software development Comissioning a developer to create an app/online headache diary £20,000 Staff time Staff member to work part-time on the development, launch and ongoing PR and marketing.
We will carry out the development onsite at the Charity's HQ - Charterhouse Square, London. The diary however will be accessible to anyone wherever they are in the world.
Potentially 1 in 10 of the UK population as this is the number that suffer with migraine. Although we expect only a small proportion keep a diary.
We are the only charity in the UK that provides treatment for migraine sufferers. We have carried out groundbreaking research and work closely with not only our own headache specialist doctors, but also educate those without expert knowledge of migraine. As mentioned previously, many GPs currently use our paper diaries, so it makes sense that we create the leading diary app.
Read more about the Charity running this project.
PR/Marketing/doctor, patient liaison.
Whoever we commission to build the app will the hugely influential from a design and technical perspective.
Our 7 Headache Specialists (Lead By Dr Farooq Maniyar)
They will be constantly consulted to ensure that the diary is asking all of the right questions and the most useful data is collected.
Chief Executive, will commission the developer and manage the budget for the project. She will project manage.