We are the only centre in the Midlands and one of just two in the UK to offer regular specialised physiotherapy and other services to those with muscular dystrophy and related neuromuscular conditions.
The NHS do not offer regular specialised physiotherapy and there is nowhere else for this group of people to access this treatment.
The work we have done on our project so far shows that a considerable need exists among the local and regional community for the physiotherapy service. As our service is filling a gap in services currently unavailable and there are no similar services being developed at present, meeting growing demand is going to be a continued challenge.
Ongoing physiotherapy is accepted as slowing the progression of muscle disease, helping people to stay strong for longer, and increasing mental well-being and independence. This service is not available on the NHS.
Through therapy, we aim to improve the physical and mental well-being of individuals from across the Midlands region, with benefit felt also by their families, carers, employers, teachers and wider communities.
Improve the physical well-being of adults and young people with neuromuscular conditions
Activities» We will provide regular on going access to specialist physiotherapy as well as the opportunity to try osteopathy, deep tissue massage, and acupuncture
Progress towards lowering pain will be recorded during therapy using the VAS scale every 3 months, & recorded and cross-referenced
Improve mental well-being and quality of life of adults & young people with neuromuscular conditions
Activities» The centre will offer advice and support on a wide range of topics, including wheelchairs, equipment and benefits.
Mental well-being will be measured using the WHO-5 Well-Being Index every 6 months once again during therapy
Increase access to treatment for young people with neuromuscular conditions going through transition
Activities» We will specifically target young people going through transition from paediatric to adult health services.
Young people experience the loss of their regular physiotherapy at the age of 18 & our project will ensure we address the needs of this group as well as a wider group of adults
On-going physiotherapy is accepted as delaying the degeneration of muscles, helping people stay strong for longer, and increasing mental well-being and independence. Through therapy, we aim to improve the physical and mental well-being of individuals across the Midlands region, with benefit also felt by their families, carers, employers, teacher & wider communities. We have commissioned Coventry Voluntary Action to evaluate the project and results from this will be considered each year.
The greatest risk to our project is staff leaving. As the project team is small, each employee is a vital member of the team. We will minimise this risk by ensuring physiotherapy remuneration is pegged to equivalent NHS salaries, by developing a positive employment culture, encouraging aspiration to internal promotion. The other major risk is raising sufficient funds to meet all ours goals. We will manage this through careful monitoring of fundraising income & by developing a sound strategy.
We will report to donors via our annual Impact Report and also through tailored communications. They will receive quarterly newsletters updating them on our work, and will have the opportunity to attend open days at the centre, as well as meeting the trustees on a 1:1 basis should they wish
Budget - Project Cost: £132,773Loading graph....
Amount Heading Description £43,695 Overheads Accomodation, office running costs, centre manager salary £80,373 Revenue Costs Physiotherapist costs, fundraising costs, volunteer travel & expenses £8,705 Capital Costs Specialist physiotherapy equipment
The centre is based in Coventry but we cover the whole of the Midlands area. However, we appreciate that we are only one of two centres in the UK that offers this service, the other being in Cheshire, and we will not turn people away should they wish to visit us and live outside the Midlands.
Our immediate beneficiaries are people with a neuromuscular condition but their treatment has indirect benefits on a much wider community. Partners, children, parents and wider family members all benefit when a loved-one's health and well-being improves. Employers and colleagues benefit when their team member remains in more consistent health. GP's, who often have very limited knowledge of this rare disease, benefit when their patient receives regular specialist treatment.
Our model is based on the successful blueprint seen at the NMC in Cheshire (the only other charity provider of long-term neuromuscular physiotherapy in the UK).The model consists of regular, specialist physiotherapy on a long-term basis, available to anyone with a neuromuscular condition. A non-clinical physiotherapy setting is shared with peers, to foster interaction & sharing experiences during therapy, where conversation is lively & inclusive. This service is not available on the NHS.
Read more about the Charity running this project.
Chair of Trustees. Julian is an experienced CEO & successful in business in the region, as well as a charity trustee with the MDC.
Lyn is our lead physiotherapist and has over 10 years experience managing patient treatment plans and delivering therapy in a community setting.