Project information

Help us to employ a clinical psychologist

One of the main challenges for brain tumour patients is coming to terms with their diagnosis and prognosis. The National Brain Appeal would like to employ a clinical psychologist to support this growing group of patients and their families.

March 2014 - February 2016

Charity information: The National Brain Appeal

The National Brain Appeal logo
  • Need

    Need

    The Brain Tumour Unit at The National has seen a 100% increase in new patients since 2010 (600 cases in 2012) . Sadly patients who are diagnosed with brain tumours have little access to support in coming to terms with this life-limiting disease and its effects on themselves, family and friends. The service would also support staff working in the unit to deal with the psychological challenges their nursing roles bring.

    Solution

    The provision of this service at The National Hospital will address a clear need - at present there is little support available once the patient has left hospital and care in the community is fragmented. The service will offer in and out-patient sessions helping patients to cope with their disease process and the likelihood of reduced life expectancy - from young adults upwards.

  • Aims

    Aim 1

    To employ a dedicated clinical psychologist for the brain tumour unit

    Activities

    » Establish an in- and out-patient service to support those diagnosed with a brain tumour.

    Success will be measured by the service being launched, and being accessed by approx 200 patients and their families (as well as staff) and feedback from those using it.


  • Impact

    Impact

    Patients have said that going home to face their diagnosis alone is a very isolating and scary experience. The service will help them to feel more secure in the knowledge that support is there when they need it and help them to live their lives to the fullest. The service will be monitored through number of attendances and evalutated through patient experience surveys.

    Risk

    That patients and families might not take up the service. All patients will be offered access to the service and encouraged to use it as they feel appropriate.

    Reporting

    Donors will receive an annual update on the service along with evaluation from patients.

  • Budget

    Budget - Project Cost: £50,000

    Loading graph....
      Amount Heading Description
      £25,000 Year 1 3 days per week service
      £25,000 Year 2 3 days per week service
  • Background

    Location

    The service will be based at the Brain Tumour Unit, The National Hospital for Neurology & Neurosurgery, Queen Square, London.

    Beneficiaries

    Patients from across the UK will benefit from this service as it offers both inpatient and outpatient care.

  • Why Us?

    Why Us?

    The National Brain Appeal is dedicated to funding projects at The National Hospital for Neurology & Neurosurgery - which is the UK's largest comprehensive neuroscience centre. The charity fully funded the UK's first dedicated brain tumour unit at NHNN and this project is part of our ongoing commitment to improve care and outcomes for patients diagnosed with brain tumours.

    Read more about the Charity running this project.

    People

    Elaine Hill

    Elaine is manager of the Brain Tumour Unit. She is a neuroscience nurse and was instrumental in setting the unit up.

    Orla McKee

    Orla is a clinical nurse specialist for benign and metastatic brain tumours. She has worked in this field for over 15 years.

    Jane Baranowski

    Jane is a clinical nurse specialist for high grade tumours. She has worked in this field for over 10 years.