Project information

Where are Harrison's friends

When your child is diagnosed with an incurable life limiting rare disease like Duchenne one of the biggest challenges is finding families also affected to connect with. A one stop portal, that logs approximate location and allows instant messaging would help bring the community and families together

2-3 months build time and then implimentation

Charity information: Harrison's Fund Ltd

Harrison's Fund Ltd logo
  • Need


    On diagnosis with a rare disease families look to families in a similar situation for support, guidance and information on day to day life. It is incredibly difficult to find and locate families in a local area to look to for this support. Parents need to know there is help and reassurance out there and the children benefit immeasurably from the knowledge and friendship of children like themselves.


    By building a secure 'hub' using proven and available technology and social platforms that allow families to 'pin' their location and contact details we can bring the Duchenne community together, bring families together and bring children with a life limiting condition together to share their knowledge, concerns and lives in a safe environment to the benefit of all.

  • Aims

    Aim 1

    Research and find suitable companies to help us bring 'Where are Harrison's Friends' to life.


    » Research the most effective creative designers to full fill thedesign of the project
    » Research the most effective website/portal builders to design and build the security and mechanics of the site.

    What success will look like

    By finding a cost effective solution for the design and build on or below budget

    Aim 2

    Engage the community in their needs and wants for a site of this kind and integrate into its build.


    » Speak to members of the community we currently know for their opinions, concerns.

    What success will look like

    By effectively producing a service portal that is designed to the discrete needs of the community, by the community.

    Aim 3

    Launch the completed project in the UK followed by a global launch.


    » Actively engage all the Duchenne Charities in the UK to support the 'hub' and launch its implementation together.
    » Actively engage all the Duchenne Charities globally to support the 'hub' and launch it's implementation together.

    What success will look like

    This will be demonstrated by the numbers of families logging themselves into the site and actively engaging with other families.

  • Impact


    We hope to alleviate a lot of the feeling of being all alone in the world with a child that is getting a little more sick every day. to help make the world a little smaller for families and children with Duchenne Muscular Dystrophy and to use the power of 'the masses' to disseminate knowledge and understanding to all those that need it,


    There is the security risk of having personal information and location online for many to see but we feel that if we integrate effective security features and use currently available platforms such as 'facebook connect' for communication that these risks are alleviated for the most part.


    We will report back to donors on a quarterly basis as to progress and development of the site as well as regular updates on site analytics and good news stories brought about because of the connections made.

  • Budget

    Budget - Project Cost: £20,000

    Loading graph....
      Amount Heading Description
      £5,000 Creative Design Designing the look feel and style of the Portal
      £10,000 Web Build Build back end and front
      £5,000 Web Build Including integrated functionality of social and location and security elements
  • Background


    This project is located online based in the UK but has the potential to affect positively the lives of 230,000 children/young people and their families globally affected by Duchenne Muscular Dystrophy


    The Duchenne population both in the UK and Globally

  • Why Us?

    Why Us?

    We are one of the key Duchenne Charities in the UK and also within the global Duchenne Alliance group of charities. We have impeccable contacts into the creative industry and leadership trustees and volunteeers ideally suited to managing this project through to completion and launch.

    Read more about the Charity running this project.


    Alex Smith

    Chief Executive/Founder Harrison's Fund and father of a Duchenne child. Alex leads Harrison's Fund and responsible for driving the charity forward

    Jono Paisley

    Trustee - IBM project lead responsible for multi million pound technology and service provider deals. A clear outcome thinker and project leader

    William Rolt - AIS London

    Our Creative Partner responsible for bringing the creative side of this project to life and helping to deliver the build and implementation.