Where are Harrison's friends
When your child is diagnosed with an incurable life limiting rare disease like Duchenne one of the biggest challenges is finding families also affected to connect with. A one stop portal, that logs approximate location and allows instant messaging would help bring the community and families together
2-3 months build time and then implimentation
Charity information: Harrison's Fund Ltd
On diagnosis with a rare disease families look to families in a similar situation for support, guidance and information on day to day life. It is incredibly difficult to find and locate families in a local area to look to for this support. Parents need to know there is help and reassurance out there and the children benefit immeasurably from the knowledge and friendship of children like themselves.
By building a secure 'hub' using proven and available technology and social platforms that allow families to 'pin' their location and contact details we can bring the Duchenne community together, bring families together and bring children with a life limiting condition together to share their knowledge, concerns and lives in a safe environment to the benefit of all.
Research and find suitable companies to help us bring 'Where are Harrison's Friends' to life.
Activities» Research the most effective creative designers to full fill thedesign of the project
» Research the most effective website/portal builders to design and build the security and mechanics of the site.
By finding a cost effective solution for the design and build on or below budget
Engage the community in their needs and wants for a site of this kind and integrate into its build.
Activities» Speak to members of the community we currently know for their opinions, concerns.
By effectively producing a service portal that is designed to the discrete needs of the community, by the community.
Launch the completed project in the UK followed by a global launch.
Activities» Actively engage all the Duchenne Charities in the UK to support the 'hub' and launch its implementation together.
» Actively engage all the Duchenne Charities globally to support the 'hub' and launch it's implementation together.
This will be demonstrated by the numbers of families logging themselves into the site and actively engaging with other families.
We hope to alleviate a lot of the feeling of being all alone in the world with a child that is getting a little more sick every day. to help make the world a little smaller for families and children with Duchenne Muscular Dystrophy and to use the power of 'the masses' to disseminate knowledge and understanding to all those that need it,
There is the security risk of having personal information and location online for many to see but we feel that if we integrate effective security features and use currently available platforms such as 'facebook connect' for communication that these risks are alleviated for the most part.
We will report back to donors on a quarterly basis as to progress and development of the site as well as regular updates on site analytics and good news stories brought about because of the connections made.
Budget - Project Cost: £20,000Loading graph....
Amount Heading Description £5,000 Creative Design Designing the look feel and style of the Portal £10,000 Web Build Build back end and front £5,000 Web Build Including integrated functionality of social and location and security elements
This project is located online based in the UK but has the potential to affect positively the lives of 230,000 children/young people and their families globally affected by Duchenne Muscular Dystrophy
The Duchenne population both in the UK and Globally
We are one of the key Duchenne Charities in the UK and also within the global Duchenne Alliance group of charities. We have impeccable contacts into the creative industry and leadership trustees and volunteeers ideally suited to managing this project through to completion and launch.
Read more about the Charity running this project.
Chief Executive/Founder Harrison's Fund and father of a Duchenne child. Alex leads Harrison's Fund and responsible for driving the charity forward
Trustee - IBM project lead responsible for multi million pound technology and service provider deals. A clear outcome thinker and project leader
William Rolt - AIS London
Our Creative Partner responsible for bringing the creative side of this project to life and helping to deliver the build and implementation.