Supporting people with M.E. in the Community
Many adults and children are living with M.E. endure profound physical and brain dysfunction, fatigue and pain. It wrecks lives. It is not just misunderstood; it is subject to prejudice and neglect, and a consequential lack of adequate health and welfare support and services.
Ongoing servive of the charity
Action for M.E.
M.E. (sometimes diagnosed as Chronic Fatigue Syndrome or CFS) is a chronic, fluctuating illness affecting 250,000 people across the UK. Symptoms include persistent exhaustion, muscle and/or joint pain, sleep disturbance, feeling ’flu-like and having problems with memory and concentration. 25% of people with M.E. are housebound. People with M.E need information and support to help deal with their situation.
Our Support Programme provides a comprehensive service that alleviates suffering financially and emotionally, and responds to a critical lack of appropriate health service provision. Its key elements are aimed at providing: Emotional and Practical Support, Welfare Rights Advice, Connecting people for Peer Support, and being a Major Provider of M.E. Information.
Funding two months running costs for our telephone support line to help people with M.E
Activities» Support trained staff to deal with an estimated 233 telephone calls and emails and provide appropriate follow up information.
Success will processing over 200 calls over two months and providing appropriate support and information for people with ME and their carers.
We will demonstrate the success of this project by montioring the number and content of enquiries to the M.E Support Line and working to increase the number of calls taken. We receive regular feedback of thanks from callers stating what a difference the information provided has made to them and their families / carers.
The number of calls received exceed the hours that the support line is actually operating. Any calls received out of hours will receive a message with operating hours and asked to call again following day.
Information about all the services of Action for ME are listed on the charity website and featured in donor / membership publications like our newsletter InterAction.
Budget - Project Cost: £8,700Loading graph....
Amount Heading Description £8,700 Running cost Staff salary and information
Action for ME operates throughout England, Wales, Scotland and Northern Ireland
M.E affects over 250,000 people throughout the country. The Action For ME support line is open to them, their families, carers and health professionals wanting more information about M.E.
Action for M.E. is the UK’s leading charity for people with M.E. (Myalgic Encephalomyelitis) – a neurological illness that disables people with profound physical and brain dysfunction, fatigue and pain. We have over 25 years experience providing support, funding research and working with health professionals and key decision makers to ensure people with ME are appropriately supported.
Read more about the Charity running this project.
Trish leads a team of fully trained staff and volunteers to offer confidential support, understanding and information to adults affected by M.E.