Project information

Supporting people with M.E. in the Community

Many adults and children are living with M.E. endure profound physical and brain dysfunction, fatigue and pain. It wrecks lives. It is not just misunderstood; it is subject to prejudice and neglect, and a consequential lack of adequate health and welfare support and services.

Ongoing servive of the charity

Charity information: Action for M.E.

Action for M.E. logo
  • Need

    Need

    M.E. (sometimes diagnosed as Chronic Fatigue Syndrome or CFS) is a chronic, fluctuating illness affecting 250,000 people across the UK. Symptoms include persistent exhaustion, muscle and/or joint pain, sleep disturbance, feeling ’flu-like and having problems with memory and concentration. 25% of people with M.E. are housebound. People with M.E need information and support to help deal with their situation.

    Solution

    Our Support Programme provides a comprehensive service that alleviates suffering financially and emotionally, and responds to a critical lack of appropriate health service provision. Its key elements are aimed at providing: Emotional and Practical Support, Welfare Rights Advice, Connecting people for Peer Support, and being a Major Provider of M.E. Information.

  • Aims

    Aim 1

    Funding two months running costs for our telephone support line to help people with M.E

    Activities

    » Support trained staff to deal with an estimated 233 telephone calls and emails and provide appropriate follow up information.

    Success will processing over 200 calls over two months and providing appropriate support and information for people with ME and their carers.


  • Impact

    Impact

    We will demonstrate the success of this project by montioring the number and content of enquiries to the M.E Support Line and working to increase the number of calls taken. We receive regular feedback of thanks from callers stating what a difference the information provided has made to them and their families / carers.

    Risk

    The number of calls received exceed the hours that the support line is actually operating. Any calls received out of hours will receive a message with operating hours and asked to call again following day.

    Reporting

    Information about all the services of Action for ME are listed on the charity website and featured in donor / membership publications like our newsletter InterAction.

  • Budget

    Budget - Project Cost: £8,700

    Loading graph....
      Amount Heading Description
      £8,700 Running cost Staff salary and information
  • Background

    Location

    Action for ME operates throughout England, Wales, Scotland and Northern Ireland

    Beneficiaries

    M.E affects over 250,000 people throughout the country. The Action For ME support line is open to them, their families, carers and health professionals wanting more information about M.E.

  • Why Us?

    Why Us?

    Action for M.E. is the UK’s leading charity for people with M.E. (Myalgic Encephalomyelitis) – a neurological illness that disables people with profound physical and brain dysfunction, fatigue and pain. We have over 25 years experience providing support, funding research and working with health professionals and key decision makers to ensure people with ME are appropriately supported.

    Read more about the Charity running this project.

    People

    Trish Calverley

    Trish leads a team of fully trained staff and volunteers to offer confidential support, understanding and information to adults affected by M.E.