Project information

Facial Palsy UK Core Costs Year 1

There is currently widespread misunderstanding of facial palsy both among the public and medical profession, leading to lack of support, delayed diagnoses, and poor outcomes for patients. There is also a need for medical research into the causes, effects and new treatments for the condition.

August 2012 - August 2013

Charity information: Facial Palsy UK

Facial Palsy UK logo
  • Need

    Need

    The launch of the charity must be exploited fully. This will ensure we can successfully raise awareness of our key messages to our stakeholder groups – donors, medical professionals, facial palsy patients, and the general public. Post launch, we need to build support networks and ensure we are able to deal effectively with growing interest in the charity which the launch will stimulate. We must also continue to raise sufficient funds to ensure the sustainability of the charity, long term.

    Solution

    We propose to hire a Communications and Fundraising Director to oversee this activity, and a specialist charity PR agency to raise our profile. A Fundraising Coordinator and freelance fundraisers will raise funds from individuals, Charitable Trusts, Major Donors and Corporates to ensure our long term sustainability. A Charity Coordinator will deal with enquiries, and will handle all administration duties. A Support Group Coordinator will develop support networks to reach out to patients.

  • Aims

    Aim 1

    Launch the charity successfully, simultaneously raising awareness of facial palsy and the charity.

    Activities

    » An integrated campaign of PR, advertorial and events will ensure our messages are delivered to our stakeholders in a way they will engage with.

    Success will be receiving excellent national and regional coverage for the launch of the charity, together with the website receiving a marked increase in unique visitors.


    Aim 2

    Fundraise to ensure all appropriate donors are given the opportunity to invest in our vital work.

    Activities

    » Fundraisers will research donors and develop tailored bids for each appropriate donor. Fundraising events will be incorporated in this.

    In Year 1 at least 1 funding bid is researched and placed per month, with at least 6 major donations being received by the charity, plus hundreds of individual donations.


    Aim 3

    Ensure all incoming enquiries and the charity’s administration are dealt with properly.

    Activities

    » A Charity Coordinator is hired to work full time.

    Enquiries from people with facial palsy, members of the public, donors, media and medical professionals are dealt with efficiently and correctly.


    Aim 4

    Create, run and promote support groups UK-wide to reach out to facial palsy patients with advice.

    Activities

    » Hire a Support Group Coordinator to manage the support groups, including information packs, talks by experts, and health and well-being workshops.

    Support groups will be well attended and begin the important work of giving counselling, support and advice for people living with facial palsy and who often experience isolation.


  • Impact

    Impact

    The project will change public and medical perception of facial palsy. People with the condition will be able to access the correct treatment in good time, ensuring optimum results. National Support Groups will help people with facial palsy deal with their concerns. Potential funders will be made aware of the charity’s potential, and given the oportunity to fund the charity through its first year and into its development of research projects. The charity’s operations will run smoothl

    Risk

    There is a risk that people with facial palsy are adversely affected by publicity aimed at promoting the charity. Through a 15 strong Community Advisory Board we have made every attempt at understanding patients’ concerns and moderating our communications with these in mind. We are aware of the need to appear credible in the eyes of the medical profession, and we are also working with a 22 strong Medical Advisory Board to ensure our communications are peer reviewed and credible.

    Reporting

    Donors to this project will receive a monthly email report on the project detailing the ongoing and forthcoming activities, and any milestones reached, plus a description and explanation for any necessary changes that have been made to the project, and will be able to contact us at any time.

  • Budget

    Budget - Project Cost: £164,000

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      Amount Heading Description
      £20,000 Communications Director p/t Directing Communications and Fundraising activity
      £30,000 PR agency Executing PR activity
      £13,000 Fundraising Coordinator p/t Coordinating Individual Fundraising activity
      £23,000 Charity Coordinator Coordinating admin and contact point
      £36,000 2 x Freelance Fundraisers Researching and compiling bids to major donors, trusts and corporates
      £10,000 Launch costs Events, Marketing Materials
      £32,000 Support Group Coordinator Directing support group activity
  • Background

    Location

    The project will be UK-wide, with workers working from home and Coordinating Support Groups across the UK, plus the Charity Coordinator working from an office in the East Grinstead, West Sussex area in the South of England.

    Beneficiaries

    UK facial palsy sufferers will benefit from better access to treatment, better understanding from the public and doctors, and from support networks. There are 18,000 new cases of Bell's per year in UK which makes up 60-75% of all facial palsies (24,000-30,000 cases/year of facial palsy can be estimated). The average (median) age of onset is 40, and 3600 Bell's palsy patients are left with long term side effects. Older patients with facial palsy are in the majority, but it can affect all.

  • Why Us?

    Why Us?

    Facial Palsy UK is the first charity worldwide dedicated to facial palsy and is led by experts in the field. A Medical Advisory Board of leading practitioners from a range of professions of relevance to facial palsy is leading work on medical research. A Community Board of facial palsy patients are working voluntarily to develop the charity’s communications, strategy, and the building of the website and a network of support groups. A Board of Trustees is now being sought to help us in this.

    Read more about the Charity running this project.

    People

    Consultant Plastic And Reconstructive Surgeon Charles Nduka.

    Charles started the charity based on the need he observed when treating facial palsy patients at the specialist NHS clinic he set up.

    Facial Rehabilitation Therapist Vanessa Venables.

    Vanessa worked with Charles to set up the charity due to her interest and passion in improving the quality of life for people with facial palsy.

    Community Advisory Board Member Karen Johnson

    An internet marketing professional, Karen has been raising awareness of facial palsy via online channels. Karen was born with facial palsy.

Ron, whose carcinoma led to facial palsy

Ron, whose carcinoma led to facial palsy

£20000

Will fund a charity Coordinator

"I was astounded that the average time since paralysis began to receiving treatment was almost 6 years for patients we audited. "

Charles Nduka Consultant Plastic Surgeon