Community support for people with aphasia
Across the UK, approximately 250,000 live the communication disability aphasia.
Our aim is to create a network of peer-led community groups across the UK, delivering vital services for people with aphasia within the ethos of Connect's innovative model of support.
Charity information: Connect - the communication disability network
Aphasia is a communication disability that is acquired as a result of stroke, brain tumour or brain injury. Every aphasia sufferer experiences different symptoms. Some cannot speak at all, and others can no longer read, write or use numbers.
It is a hidden disability that can cause significant difficulties: isolation, low self esteem, lack of confidence. Every day tasks become a challenge – shopping, using the phone, dealing with money and even reading your child a bedtime story.
At Connect, we work with people, aiming to build confidence and reveal competence so that they can move forward to help each other and build sustainable communities. In our recent survey 87% of people with aphasia we spoke to rated our services as 'good' or 'very good'.
Our outreach project has been piloted with a project in Canterbury, which still provides essential support to people with aphasia along with their families and carers.
Spread Connect's services so they can reach more people with communication disability who need them.
Activities» Identify those who need us in local areas, liaising and partnering with existing organisations to find those interested in creating new groups.
» Work with these volunteers, with aphasia and without, to plan activities using the model of Connect's services as a template.
» Provide training, guidance and ongoing support to ensure the groups follow the model of success already adopted by Connect.
Success will be... more people with aphasia, wherever they live, having access to Connect's network of support.
Supporting greater numbers of people with aphasia and promoting awareness of communication disability and the impact it has on peoples lives.
A wider network of people with aphasia having access to the support they need, and the opportunity to develop and contribute to services for those with similar experiences.
There is a risk that services that are distant from the main centre of the charity can stray from the ethos and successful model of Connect.
With the funding in place to provide sufficient training and a strong network, Connect will be able to support these groups throughout their development.
Donors will be regularly updated on the progress of each group through Connect's various channels of communication - email, social media and newsletters.
Donors will also be encouraged to actively participate in identifying potential groups in their local area.
Budget - Project Cost: £10,000Loading graph....
Amount Heading Description £4,000 Set-up Identifying potential groups and locations, securing venues, funding advertising and publicity £3,000 Training Providing comprehensive training and guidance so groups can develop in line with Connect's ethos £3,000 Ongoing support Providing a network of ongoing support, ensuring groups remain an accredited service of Connect
This project will be located wherever there is local interest, and need for, Connect's work.
We already know that there are a number of individuals interested in planning projects in their area.
People with aphasia and communication disability who have a need for the support Connect can provide, but live too far from where our current services are based.
These people come from all possible backgrounds, all over the country, united by their experiences of communication disability.
We established Connect twelve years ago and are constantly working hard and striving to support increasing numbers of people with aphasia.
From a recent survey, some 97% of the 400 healthcare professionals questioned rated our services as ‘good or very good’ and commented that Connect was “A fantastic model of the services that should be available to people with Aphasia throughout the Country”.
Read more about the Charity running this project.
Training and Consultancy Lead
Specialist Development Manager