Project information

Sickle Cell & Young Stroke Survivors Youth Club

The SCYSS Youth Club is for young people aged 8 to 21 who are living with sickle cell anaemia and childhood stroke.
It is non-hospitalised setting run by volunteers for young people to come together, boost their confidence and well-being as they have fun and learn to take care of themselves.

July 2016 - August 2016

Charity information: Sickle Cell & Young Stroke Survivors

Sickle Cell & Young Stroke Survivors logo
  • Need


    The main problems are self-esteem, isolation, loneliness, low moods and unhelpful thoughts such as self harming and committing suicide.

    As a charity we have found many young people face 2 or more of these problems and many have no one to turn to as they see themselves as a burden to Parents and siblings.
    The club through its summer activities provides an avenue for them to have fun as well as provides the charity to reach children in a relaxed environment to find out more about their problems


    Through the Summer club we normally hold various workshops, these create opportunities to assess the children and earn more about their fears and anxieties.
    With this SCYSS can either work on a one to one basis with the young person or provide group workshops or visit the home to ensure we are able to help them from home.
    We will also advocate, sign post young people or refer them to other organisations that will provide practical support

  • Aims

    Aim 1

    To provide a positive experience to break isolation and build self esteem


    » We will provide age appropriate activities and outings.
    » A major activity of the Youth club is to have a seminar that helps them to build their confidence, speak about their illness and share ideas.

    Success will be providing activities and outings to 8 to 21 year old that need our support

  • Impact


    The project will raise the voice of young people living in silence with this condition; as well as instillconfidence to self advocate as many transition to adult services.

    We will demonstrate the success by monitoring the increase in membership to the club and the referrals we will have to make to other agencies.


    There is a risk that if we do not have enough funding the Youth club will close down and we will be unable to offer services to the children directly.


    We produce a yearly annual report and report directly to the donors at the end of each project.

  • Budget

    Budget - Project Cost: £35,000

    Loading graph....
      Amount Heading Description
      £5,000 'It's all about me' workshop This is a workshop held at Chessington Holiday In hotel and free entry into the park
      £7,000 Summer playscheme Includes 2 trips, volunteer cost and refreshments
      £6,238 Salary Youth Cordinator Part time
      £6,192 Sessional worker Volunteeand s 3 sessional workers at £11 per hour and 4 volunteers @ £10.00 per day x 36
      £4,320 Venue £120 for 36 weeks
      £3,550 Insurance, Equip and First aid Insurance is £500; Play equipment and Presentation equipment
      £2,700 Youth Committee For running the Youth committee meetings

    Current Funding / Pledges

    Source Amount
    Roald Dahl £3,000 Guaranteed
  • Background


    We are based in the London borough of Southwark but have service users from all over London


    Children and Young people and their siblings will benefit from this Youth club.

  • Why Us?

    Why Us?

    Over the past 10 years we have been catering for children and young people that have sickle cell and childhood stroke and have gained a wealth of experience in ensuring that the needs of these children are met both in and out of schools.
    Most of us volunteering have been touch by sickle cell in one way or another and this is experience that cannot be learned from courses except you experience it for real.

    Read more about the Charity running this project.


    Carol Nwosu

    Founder and Chief Executive Officer

    Belkisu Mohammed

    Community Engagement Officer

'I'ts all about me' Workshop Chessington 2012

'I'ts all about me' Workshop Chessington 2012


This will pay for the initial registration fee for 1 years admission to the club.