Sleep Project for children with disabilities
Research supports sleep problems tend to be greater in prevalence & severity in children with physical or learning disabilities placing additional pressure on the family unit.This service improves quality of life, providing assistance to disabled children & their families at a level they wish.
January 2012 - December 2012
Charity information: Cerebra - For Brain Injured Children And Young People
Stress, depression & lack of sleep are commonly experienced problems in families with a disabled child. Problems such as regular waking, refusing to go to bed & bed wetting are common in all children however such disorders are even more common in children with a learning or physical disability. In a study of children with disabilities, 51% of children under 16 years of age were said to have difficulties settling at night with settling difficulties persisting through childhood
The Sleep Service works with families assisting at the level the family needs. This may be receiving information sheets to telephone/email contact to a home visit and detailed sleep plan. The project works to establish and maintain normal sleep routines and reduce stress within the family.
To recognise disabled children & to work with & for the child rather than their disability.
Activities» Considering the sleep patterns and problems of each individual child and working towards a solution that fits them, their disability and their family.
What success will look like
Success will be..an improvement in sleep. Feedback is sought from all families to ensure what we do works. Families are invited to get back in contact at any time if needed.
Long term changes is an improved sleep routine and pattern. The child will have improved day time functioning and parents are less tired and stressed. The family unit becomes more harmonious. The focus on sleep deprivation is shifted.
Our Sleep Workers carry out home visits, this risk has been dealt with in our 'lone worker' policy.
Sleep updates and reports are provided at half year and year end as required.
Budget - Project Cost: £145,849Loading graph....
Amount Heading Description £145,849 Sleep Service Total cost includes all running costs, salaries and travel allowance for four Sleep Workers
Current Funding / Pledges
Source Amount Charitable Trust £500 Guaranteed
The Sleep Porject works with families across the UK. We have four sleep workers; 1 covers Wales, 1 covers the South West of England, 1 covers the Midlands and the other is based in the North West of England. There are plans to employ additional sleep workers in the future as funds allow. At present, travel costs for the team amount to approximately £15,000 a year.
Children and young people with disabilities (brain related) across the UK, up to 16 years of age.
Cerebra is a national charity supporting approximately 15,000 families of children with brain related conditions. We offer services that families have told us are needed. Most children grow out of sleep problems. For children with disabilities the lack of sleep can be relentless and ongoing.
Read more about the Charity running this project.
The Sleep Team
The four Sleep Workers are contacted by families across the UK with sleep problems, they work with them to improve sleep patterns and routine.