Participating Project

Project information

Dementia clinic nurse

BRACE helps fund research in the Bristol Brain Centre. This additional post will improve patient care as well as enhancing research. The nurse will support patients through diagnosis and subsequent treatment, and reduce waiting times generally.

We are seeking a year's funding from early 2019

Charity information: BRACE - dementia research

BRACE - dementia research logo
  • Need

    Need

    The difficult experience of patients who receive a diagnosis of an incurable neurological disease. Some treatments (not cures) are available, and could be administered with help from the nurse. The role would also provide emotional support for the patient and their family and reduce waiting times for others.

    Solution

    Additional staff time and expertise

  • Aims

    Aim 1

    Enhancing research into MCI and dementia


    Activities

    » Testing in MCI patients and longitudinal assessment of progression to dementia

    What success will look like

    Success will be...published articles in peer-reviewed journal resulting in early detection of dementias and enhanced care for patients


    Aim 2

    Enhancing the clinical service to patients and support of their families


    Activities

    » Providing dedicated nurse time to ensure that support is available before and after diagnosis (including treatments)

    What success will look like

    Success will be... evidence of patient satisfaction through the NHS Trust


    Aim 3

    Reducing patient waiting times


    Activities

    » Direct consequence of above - more staff time

    What success will look like

    Success will be... evidence of patient satisfaction through the NHS Trust


  • Impact

    Impact

    Our long term aim is to maintain funding for this post through continuous fundraising, using the impact of the new nurse as evidence. We have previous experience of working in this way to create and sustain a clinic role.

    Risk

    NHS cutbacks to related posts. None are expected, and the Trust has increased its dementia commitment in recent years.

    Reporting

    All donor will have the option to be added to our mailing list. They will then receive our three mailings each year (more by email if this means is selected). Information regarding BRACE funded research is also posted on our website.

  • Budget

    Budget - Project Cost: £15,000

    Loading graph....
      Amount Heading Description
      £15,000 Salary and on-costs Fixed hours for an NHS nurse - salary and other employment costs

    Current Funding / Pledges

    Source Amount
    Funds raised to date £2,800 Guaranteed
  • Background

    Location

    Project is based at Southmead Hospital, Bristol.

    Beneficiaries

    Patients attending the dementia clinic and receiving a diagnosis of dementia or MCI. Ultimately this project will benefit dementia patients worldwide.

  • Why Us?

    Why Us?

    BRACE was a key funder in creating the Bristol Brain Centre and also the dementia research team (ReMemBr Group) within it. We have a close association with this research group and understand its needs through regular conversation with the PI and team members.

    Read more about the Charity running this project.

    People

    Dr Liz Coulthard

    Consultant in charge, Liz is an NHS Neurologist and a medical scientist within the University of Bristol

SPECT Scans: show frontotemporal dementia.

SPECT Scans: show frontotemporal dementia.

£300

will pay for a button box to assess reaction times

Alzheimer's presents a huge threat but research here could help defeat it

Mark Poarch, BRACE Chief Executive