Life-changing medical equipment for heartchildren
Enabling children with heart conditions to spend more time in education and less time at hospital
June 2012 - December 2014
Children's Heart Federation
Most heart children have to make regular visits to hospital for blood tests to measure the thickness of their blood. These regular visits not only interrupt schooling but often force parents to take time off work, which can lead to a reduction in pay. They often also cause childcare issues for brothers and sisters of school age.
Through the provision of INR machines, a child can use a simple procedure to test their blood at home, contrasted with a needle being used to take blood at hospital. INR machines measure the thickness of blood. If the blood is too thick there is a danger of blood clots which can cause strokes, but if the blood is too thin there is a risk of internal bleeding.
The machines are provided by the CHF as part of a package that includes training and guidance from a doctor or Cardiac Liaison Nurse.
To enable children to spend more time in education and less time at hospital
Activities» INR machines are provided to children with heart defects enabling them to test their blood at home instead of attending regular hospital appointments.
Success will be demonstrated by showing heartchildren’s improved level of attendance through survey results
To optimise a heartchild’s health by more closely regulating their required medication levels
Activities» The provision of INR machines will make home-testing for children stress free and will encourage more frequent testing
Evidence for the optimisation of a heartchild’s health will be provided in the feedback from Cardiac Liaison Nurses when families call them with their INR readings
To reduce the financial burden on families
Activities» Considerably reduce the number of visits to hospital, meaning parents no longer have to worry about the significant cost of petrol and parking fees.
The reduced financial burden on families will be seen in feedback from parents, heartchildren and siblings, and through member groups’ contact with families
To help heart children form better relationships with their peers
Activities» Make it possible for children with heart conditions to spend less time at hospital and more time with their peer groups forging strong relationships
Evidence of the improved relationships heartchildren have with their peers will be measured by feedback from schools and the heartchildren
1. Improved performance in school through improved attendance
2. Young people feeling more in control of their health & treatment
3. Less fragmented family life
4. Decreased fear of needles & hospitals
Toward the end of this project parents and heartchildren will be asked to comment on long-term changes. We will seek feedback from CLNs, and from siblings who will be asked how the machines have changed their lives. Any key findings will be evaluated and shared with stakeholders.
Machines being used incorrectly by children and/ or parents causing potential danger to the heartchild.
We prevent this from being a risk by ensuring machines are sent to the Cardiac Liaison Nurses who train the parents and children in how to use them. CHF are also here 9.30 - 4.30 Monday - Friday for any questions families have around their machines.
We will provide a written report in both electronic and hard copy format, with photographs and quotes from heartchildren, their siblings and parents who have benefitted from this support, explaining the impact these machines have had on their lives.
Budget - Project Cost: £67,000Loading graph....
Amount Heading Description £39,900 Medical equipment £399 for each machine x 100 machines £9,100 Postage Assessment for suitability of machine &£31 for recorded delivery for each machine £18,000 Training and support 100 machines at £180 per machine
Current Funding / Pledges
Source Amount Anonymous £20,000 Conditional
Machines will be provided to children from across the UK and Ireland
Children with heart conditions, their siblings, parents and classmates
The Children’s Heart Federation is the UK’s leading children’s heart charity and we work closely with the Cardiac Liaison Nurses in all of the 14 specialist cardiac centres across the UK and Ireland.
Read more about the Charity running this project.
CHF’S Family Support Team And The Cardiac Liaison Nurses
They will work together to identify those most in need of these life-changing machines and train families in how to use them.
This machine saves time and expense and reduces the psychological implications for my son. Thank you so much.