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Project information
Supporting a better life - spare £1
Can you spare £1 to support a better life for the 47% of people born with Down's Syndrome who also have a congenital heart condition?
If 5000 people could spare just £1 that would make an incredible difference to our charity and allow us to continue the work we've done for over 20 years.
June 2011 - December 2011
Charity information: Down's Heart Group
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Need
Need
Being told your baby has Down's Syndrome is devastating, but imagine if you are one of the 47% who are then told they also have a potentially life-threatening heart condition.
Your whole world turns upside down and you feel alone and isolated in a world of medical terminology you don't understand. It can be a totally terrifying experience and you don't know where to turn to find helpful information and someone to talk to.Solution
For over 20 years, DHG has been helping these families - using personal experience, our staff and trustees provide easy read information, support and answer their questions.
We are there at every stage of their journey, from pre-natal diagnosis and birth, through open heart surgery and beyond. Support is there for those who do not have surgery, whatever the reason and for those facing bereavement.
But we are facing a funding crisis and without help the group may be lost forever. -
Aims
Aim 1
To help ensure we have sufficient funds to maintain our support and information service.
Activities
» The spare £1 project
» Grant applications
» Fundraising events
What success will look like
Success will be...getting enough money in to sustain our service.
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Impact
Impact
The continued existence of DHG and deliverance of our helpline and other services.
Risk
Not getting enough funds in - we are doing everything within our power to prevent that happening. Looking for grant funding, asking for donations, encouraging fundraising events etc.
Reporting
We will report to donors by updates on our website/
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Budget
Budget - Project Cost: £10,000
Loading graph....Amount Heading Description £10,000 Core costs Core costs to run our info service till end of the year -
Background
Location
UK national but with availability to the world via our website and links with other organisations worldwide.
Beneficiaries
Families of individuals with Down's Syndrome and associated heart conditions (about 47% or DS population)
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Why Us?
Why Us?
We have been doing it successfully for over 25 years. The majority of our trustees and both our staff have personal experience of the issues and use their experience and knowledge gained from contact with families to drive our service.
Read more about the Charity running this project.
People
Penny Green
Director who has been involved with the organisation in various roles since 1990 - has full support of all trustees.
£1000
will pay support service phone/internet for a year
DHG was a huge help and support when our daughter was diagnosed with DS and had to undergo open heart surgery
