Project information

Supporting a better life - spare £1

Can you spare £1 to support a better life for the 47% of people born with Down's Syndrome who also have a congenital heart condition?

If 5000 people could spare just £1 that would make an incredible difference to our charity and allow us to continue the work we've done for over 20 years.

June 2011 - December 2011

Charity information

Down's Heart Group

Down's Heart Group logo
  • Need


    Being told your baby has Down's Syndrome is devastating, but imagine if you are one of the 47% who are then told they also have a potentially life-threatening heart condition.

    Your whole world turns upside down and you feel alone and isolated in a world of medical terminology you don't understand. It can be a totally terrifying experience and you don't know where to turn to find helpful information and someone to talk to.


    For over 20 years, DHG has been helping these families - using personal experience, our staff and trustees provide easy read information, support and answer their questions.

    We are there at every stage of their journey, from pre-natal diagnosis and birth, through open heart surgery and beyond. Support is there for those who do not have surgery, whatever the reason and for those facing bereavement.

    But we are facing a funding crisis and without help the group may be lost forever.

  • Aims

    Aim 1

    To help ensure we have sufficient funds to maintain our support and information service.


    » The spare £1 project
    » Grant applications
    » Fundraising events

    Success will be...getting enough money in to sustain our service.

  • Impact


    The continued existence of DHG and deliverance of our helpline and other services.


    Not getting enough funds in - we are doing everything within our power to prevent that happening. Looking for grant funding, asking for donations, encouraging fundraising events etc.


    We will report to donors by updates on our website/

  • Budget

    Budget - Project Cost: £10,000

    Loading graph....
      Amount Heading Description
      £10,000 Core costs Core costs to run our info service till end of the year
  • Background


    UK national but with availability to the world via our website and links with other organisations worldwide.


    Families of individuals with Down's Syndrome and associated heart conditions (about 47% or DS population)

  • Why Us?

    Why Us?

    We have been doing it successfully for over 25 years. The majority of our trustees and both our staff have personal experience of the issues and use their experience and knowledge gained from contact with families to drive our service.

    Read more about the Charity running this project.


    Penny Green

    Director who has been involved with the organisation in various roles since 1990 - has full support of all trustees.


will pay support service phone/internet for a year

DHG was a huge help and support when our daughter was diagnosed with DS and had to undergo open heart surgery

Parent in Spain