Project information

From Pregnancy to Baby and Beyond

To support women living with HIV through conception and preganancy through information, one-to-one and group support. Other women living with HIV will be engaged to volunteer as peer mentors. The project will enable women to have healthy children and give their children the best start in life.

May 2011 - September 2012

Charity information: Positively UK

Positively UK logo
  • Need

    Need

    There are 19,648 women diagnosed and living with HIV in UK. One in every 486 women giving birth in the UK was living with HIV. This accounts for 1,500 births in the UK annually. If an HIV infected pregnant woman is unaware of her infection status, her baby has a roughly 1 in 4 chance of being infected. Women newly diagnosed with HIV antenatally and those who are HIV positive and pregnant have to deal with a number of issues which if not addressed, can impact on their ability to access support.

    Solution

    It will provide a comprehensive approach to women at all stages of pregnancy and childcare.

    Pre-pregnancy:To develop information and workshops to support women living with HIV, understanding of pregnancy and childcare transmission routes.

    Ante-natal:To provide emotional and practical support to women diagnosed HIV positive through ante-natal testing in coming to terms with an HIV diagnosis.

    Post-natal:To provide information and advocacy to women living with HIV to access healthcare.

  • Aims

    Aim 1

    Pre-pregnancy
    To develop information and workshops about reducing transmission during pregnancy.

    Activities

    » Workshops for women and their partners addressing the ‘pregnancy journey’: pre-conception; pregnancy; delivery and after care of mother and baby.
    » Tailored one to one support with sero-discordant couples to identify contraception and pregnancy options, negotiating safer sex and safer conception.

    Success will be the increased understanding in sexual health and onward transmission, as well as parents taking steps to reduce transmission and promote safer sex during pregnancy.


    Aim 2

    Ante-natal:To provide emotional and practical support to women diagnosed HIV positive.

    Activities

    » Specific support and interventions for women newly diagnosed ante-natally in coming to terms with a new HIV diagnosis.
    » Training and support to enable women who have been through the pregnancy journey while living with HIV to volunteer as peer mentors.
    » Production of leaflets and a web based discussion forum for women to be fully engaged and active in their health and pregnancy care.
    » One-to-one mentoring for women living with HIV in managing their pregnancy, treatments and preparing for birth.

    Success will be the reduced isolation of women living with HIV and the establishment of sustainable peer networks; alongside engagement in their health and social care.


    Aim 3

    Post-natal:To provide information and advocacy to women living with HIV in accessing healthcare.

    Activities

    » Production of information and materials such as information leaflets and a web based discussion forum for women to be fully engaged and active.
    » Facilitated referrals to other healthcare providers, clinics, NGOs and Sure Start to meet wider needs of mothers living with HIV and thier families.

    Success will be increased knowledge of, and access to, health and social care services, including SureStart to ensure children have the best start in life.


    Aim 4

    To develop best practice and share information around pregnancy and HIV.

    Activities

    » Undertake research and develop evidence based approach to needs of women living with HIV around pregnancy and early years.
    » To influence decision and policy makers including health commissioning through use of evidence base and research.
    » Sharing good practice wihealthcare providers and other NGOs through presentations at conferences.
    » Working in partnership with other HIV service providers nationally to develop peer mentoring and interventions.

    Success will be the adoption of best practice by other NGO's and changes to health and social care policy to fully support women living with HIV through pregnancy


  • Impact

    Impact

    Parents will have increased emotional health, confidence and greater take up of sustainable education, training and employment opportunities. Children will be both healthy, HIV negative, and have increased access to opportunities from an early stage in life. Positively UK retains contact with many service users and sample research will demonstrate long term outcomes. Previous service users will also volunteer as peer mentors and support other women through the pregnancy journey.

    Risk

    This project requires close links with HIV centres across London, promotion by clinicians and referals. Positively UK have a Steering Group for this project and members include representatives of all major HIV centres in London. Healthcare staff are also involved in the development and ongoing monitoring and evaluation of the project as well as delivering training to peer mentors. Maintaining involvement at this level and demonstrating benefit is key to this project.

    Reporting

    Reporting will be undertaken on a number of levels and tailored to meet the needs of individual donors.

    General updates such as our monthly newsletter, our quarterly magazine for women and our website.

    Presentations to major donors

    Reports and project updates sent direct to donors

  • Budget

    Budget - Project Cost: £48,642

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      Amount Heading Description
      £34,000 Project Manager Full time project manager salary plus NI and pension
      £2,970 Volunteer Manager 3 hours per week of volunter manager to undertake recruitment, training and support peer mentors
      £4,526 Running Costs Workshops including provision of creche, publicity and information
      £3,146 Volunteer Costs Comprehensive 5-day training for peer mentors and reimbursement of out of pocket expenses
      £4,000 Overheads Including office space, training and workshop space
  • Background

    Location

    Approximately 90% of activities will take place in London, with provision of workshops at Positively UK's premises in London; one-to-one support provided at Positively UK, clinics across London and through home visits.

    Telephone advice will be accessible to women outside London and information materials will be distributed across the UK

    Beneficiaries

    The target groups are:
    Women newly diagnosed HIV positive through ante-natal care
    Women diagnosed and living with HIV and pregnant
    Women diagnosed HIV positive and considering pregnancy
    Concordant and discordant male (and female) partners of women living with HIV
    Men living with HIV in discordant relationships

  • Why Us?

    Why Us?

    Positively UK has a history of supporting women and keeping them informed on HIV and other psycho-social issues faced by women living with HIV. Positively UK has a core ethos of peer support thus all project staff and volunteer mentors will be women living with HIV. This project will develop an effective sustainable model of education, information and emotional support for women living with HIV in all aspects of conception, ante-natal and post-natal healthcare.

    Read more about the Charity running this project.

    People

    Angelina Namiba, Project Manager

    With 13 years work experience in the HIV sector, Angelina will be responsible for co-ordinating all aspects of the project and workshop development.