Project information

Champions for Babies with Congenital Heart Disease

Tiny Tickers aims to improve the care of babies with congenital heart disease (CHD) before they are born. We have successfully trained hospitals to improve screening and now we want to support CHD Champions at each hospital to ensure our training keeps going and helps more babies in the future.

January 2011 - December 2011

Charity information: Tiny Tickers

Tiny Tickers logo
  • Need


    Only 1 in 3 babies with heart disease are detected and diagnosed before birth, despite the many benefits of early detection.
    We have trained hospitals to screen for congenital heart disease (CHD) before birth so that more babies will be detected and diagnosed in the future.
    To maintain improvements at a local level, we now want to create and support a network of CHD Champions in each hospital or unit.


    These CHD Champions will provide expertise, motivation, encouragement to the whole department and a constant reminder of the importance of early detection of heart disease.
    Tiny Tickers aim to actively support these Champions who will, in turn, help to sustain the department's detection rates.
    Overall, more babies with heart disease will be detected through this initiative.

  • Aims

    Aim 1

    Establish a network of Congenital Heart Champions


    » Pilot project - pilot CHD Champions in 12 selected hospitals who are keen to participate
    » Feedback from Pilot - measure success and make recommendations for rollout & engage stakeholders
    » Rollout - support more hospitals to have CHD Champions and then support those Champions

    What success will look like

    Success will be determined from quantitive measures including better screening figures and less tangible measures such as motivation, teamwork, and satisfaction.

  • Impact


    In the long term, we expect that more babies will be found by screening, which will be beneficial to these babies, their families and doctors.
    Success will be demonstrated in data from central databases that monitor the numbers of heart babies who receive a prenatal detection (specifically the public CCAD database).


    The project could take longer if it became difficult to reach hospitals and explain the benefits of having a Champion.
    We can anticipate this by having good examples showing the benefits and ease of change in our Pilot hospitals.


    We will report progress via our website at regular intervals.

  • Budget

    Budget - Project Cost: £25,000

    Loading graph....
      Amount Heading Description
      £12,000 Pilot 6 month pilot in 12 hospitals
      £4,000 Feedback 2 month feedback and recommendations
      £9,000 Rollout 4 month support for roll-out
  • Background


    Across UK (we are a national charity), starting with England and Wales, but then going on to Scotland and Northern Ireland.


    Long-term, this will benefit the 2,500 babies who are born with serious congenital heart disease and their families in the UK every year.

  • Why Us?

    Why Us?

    We have over ten years of expertise, experience and committment to improving the care of babies with congenital heart disease.
    Our training has been a great success and is starting to make a difference. We now want to ensure we build upon this success and make it sustainable into the future.

    Read more about the Charity running this project.


    Wendy & Helen

    Wendy and Helen are Senior Trainers and their knowledge and experience will be key to the success of this project.

Lola - a lovely heart baby

Lola - a lovely heart baby