Supporting a regional network of research nurses
50% of adults with leukaemia won't survive. In Birmingham we have scientists and clinicians working together to extend life expectancy, potentially saving lives. Haematology research nurses enable new treatments to get from the lab into the patient who has exhausted all standard NHS treatments.
We have already been able to fund some research nurses but more are needed.
Historically the Midlands has not been able to run many clinical trials as the NHS do not fund research nurses which are what is needed to facilitate taking research forward.
The limited trials that have occurred can only be run from the centre in Birmingham. Patients are often required to attend the clinic 3-4 times a week. As leukaemia can leave patients feeling very weak those living outside of the immediate area often just don't feel able to travel to Birmingham to be part of a trial.
Funding a network of research nurses has many benefits:
1) It enables patients to be treated in the their local hospital rather than having to travel to the centre in Birmingham. Therefore, more patients have access to potentially life saving new drugs and treatments.
2) Samples and data received from patients during treatments are fed back and used by the scientists to help understand the disease and response to treatments further. The more information the better.
Secure funding for research nurses at hospitals across the Midlands who wish to partner with us.
Activities» Establish a partnership with the hospital looking to join the research programme. Some form of match funding is usually sought from their NHS Trust.
» Raise funds for the £20k funding Cure Leukaemia provides per research nurse.
Success will be...when we have Research Nurses in place at all the hospitals wishing to work with us and we have trials being run throughout them all.
The project long term will bring about a network of nurses working together to work closely with leukaemia patients who will be able to access new and potentially life saving drugs and treatments in their local hospital.
This will in turn strengthen the research being undertaken by scientists at the centre who will be able to access data from a greater number of patients.
Another indicator of the success of this project will be if the centre then attracts funding from drug companies.
Difficulties in communication between the different working parties eg The Centre at the University Hospital Birmingham, the partnering hospitals and Cure Leukaemia (the charity funding the nursing posts). Agreements have been put in place as to how funding will work and agreed timescales for funding.
Independent working of the Research Nurses. The nurses will be supported through regular meetings so they can receive training, share best practice and given a support base.
Any donors who support a specific hospital will receive an annual report on the work of that specific hospital.
We are more than happy to receive visits from major donors who might wish to see for themselves how the project is working.
As a charity, an annual report is always available.
Budget - Project Cost: £440,000Loading graph....
Amount Heading Description £160,000 4 Research Nurses at Birmingham for 2 years £40,000 1 Research Nurse at North Staffs for 2 years £40,000 1 Research Nurse at Russells Hall for 2 years £40,000 1 Research Nurse at Worcester for 2 years £40,000 1 Research Nurse at Warwick for 2 years £40,000 1 Research Nurse at Stratford for 2 years £40,000 1 Research Nurse at Coventry for 2 years £40,000 1 Research Nurse at Hereford for 2 years
Current Funding / Pledges
Source Amount Charitable Trust £40,000 Guaranteed Charitable Trust £30,000 Guaranteed
The Leukaemia Centre is based at the Queen Elizabeth Hospital site in Birmingham. The hospitals the centre is working with cover the whole of the West Midlands area - north to Staffordshire/Stoke, the east - Coventry and Warwickshire, the South - Worcestershire and into Herefordshire and westerly to the Black Country.
These are the patients who will immediately benefit but it is fair to say that the findings of these trials will have a positive impact on all patients living with leukaemia.
Patients living within the West Midlands suffering with leukaemia will be the first people to benefit from this initiative.
In addition patients across the UK and the world will benefit as treatments and new drugs are trialled and start to change the way this disease is treated.
Cure Leukaemia's main focus is to concentrate on clinical trials - taking the research taken from the laboratory and facilitate getting it out into patients. It therefore, compliments the work of other leukaemia charities that exist rather than complete against them.
The Centre which Cure Leukaemia supports is ideally set up to carry out this work. It has a world class team of scientists and medics and also has the second largest adult stem cell transplant programme in the UK.
Read more about the Charity running this project.
Professor Charles Craddock
Professor Craddock is one of the world's leading experts in Leukaemia. He leads the work at the Centre and is a trustee of Cure Leukaemia.