Supporting patients with motor neurone disease
To ensure maximum choice and dignity for patients with motor neurone disease (MND) our aim is to recruit a specialist practitioner to lead in developing improved services for people with MND; services to be delivered here at Saint Michael's, and in patients' homes and other community settings
It will be ongoing
Charity information: Saint Michael's Hospice
Evidence shows that at any time there are at least 20 people living with MND in the Harrogate district.
Saint Michael's flexible support will ensure that each patient will receive tailored care appropriate to their individual needs at each stage of their illness.
From the point of diagnosis all MND patients will have contact with our specialist practitioner, who will be there to support and guide them as their illness progresses.
To appoint a specialist practitioner who will develop improved services to patients with MND
Activities» We will work in partnership with the local MND association to ensure we provide the best possible care and support to MND patients and their families
What success will look like
Success will be shown by the positive feedback we receive from patients and their families because of the high quality patient-centred care and support they will receive.
This project is a starting point for longer term improvements to services for people affected by MND. We will listen to patients and their families and develop the project according to their feedback.
We will work in partnership with the MND Association and with their support we will ensure we comply with their standards.
We will also offer training and support to other practitiioners across all disciplines to help to improve and inform the care they offer to MND patients.
There is always a risk associated with raising the ongoing funding needed for this and our other projects. However Saint Michael's has a strong track record of identifying and delivering projects according to the needs of the local community and we are confident we can achieve the support we need.
Our donors are kept informed of developments at Saint Michael's through our Supporters' Magazine which is delivered to 12,000 households twice a year.
We also welcome visits from donors to our premises.
Budget - Project Cost: £96,600Loading graph....
Amount Heading Description £75,600 Salary costs Specialist Practitioner for three years £21,000 Running costs Travel, training, office support
Current Funding / Pledges
Source Amount MND Association £30,000 Guaranteed
At different stages of the patient's journey support will be available in a range of settings; including at home and in our Day Therapy Unit where a range of complementary therapies are offered along with medical care, emotional support and spiritual support from the chaplaincy team.
Respite breaks are available in our Inpatient Unit and ultimately end of life care and support will be offered to patients and their families in our Inpatient Unit or their own home according to their wishes.
MND can affect any adult at any age but most people diagnosed with the disease are over the age of 40, with the highest incidence occurring between the ages of 50 and 70.
Harrogate has a higher than average population of older people, so we expect at least 20 people at any one time to need the specialist care and support wecan provide.
Saint Michael's is the only hospice for adults in the Harrogate District. We have been providing end of life care and bereavement support since 1987.
This project will be informed by Saint Michael's long-standing experience and commitment in providing the highest levels of patient care.
Read more about the Charity running this project.
Tony is the Chief Executive and has led the development of this project in partnership with members of the local MND Association.