Project information

Postpartum Psychosis: Guide for parents & children

An information guide and resources to support parenting following Postpartum Psychosis. The guide will bring together practical tips from mums, dads and families who have been there, and advice from academic and clinical experts in maternal mental health, bonding, child development and peer support

January 2019 - May 2019

Charity information: Action On Postpartum Psychosis

Action On Postpartum Psychosis logo
  • Need

    Need

    Postpartum Psychosis (PP) is a severe & distressing form of postnatal illness, affecting 1-2 in every 1000 new mothers.

    There is little research or information available on parenting following PP. Women & families have many questions and fears, including how and when to talk to their children about PP.

    Our survey finds that many struggle with parenting confidence at discharge from care, and our work with adult children highlights the importance of talking to children about the experience.

    Solution

    We will develop an information guide & resources for parents/families affected by PP, bringing together practical tips from parents who have been there, and up-to-date research on bonding & parenting.

    Recovered women, family members, academic and clinical experts will input into the development.

    The guide builds on our highly regarded APP Insider Guide series, used by Mother & Baby Units and Perinatal Mental Health teams across the country.

  • Aims

    Aim 1

    To develop an Insider Guide (patient information leaflet): Parenting following Postpartum Psychosis


    Activities

    » We will run a workshop for women and family members to outline the information needed for the guide
    » We will develop a patient information guide with input from women, partners, family members, and experts in PP, child development and peer support

    What success will look like

    A survey of parents and health professionals will find that the guide supports parenting and meets their needs


    Aim 2

    To develop stimulus material for children to support age appropriate discussions about PP


    Activities

    » We will consult with women, families and experts about useful aids to use with children to facilitate discussion about PP
    » We will develop and pilot resources and age appropriate stimulus materials.

    What success will look like

    A survey of parents and health professionals will find that the stimulus material supports parenting and meets their needs


  • Impact

    Impact

    Parents affected by Postpartum Psychosis will feel more informed and supported, particularly with their questions about parenting. They will feel part of a network of parents who have experienced similar issues.

    Parents will feel able to talk to their children in an age appropriate way about their experience of Postpartum Psychosis. Children will grow up in an atmosphere of openness about mental health, unaffected by the stigmas that surrounded the illness for their mothers and grandmothers.

    Risk

    APP is experienced in planning workshops for women & partners with experience of PP. Our Peer Support Coordinators have contact with each participant prior to the workshop to ensure that they are informed, sufficiently well, and particular needs are met. APP is supported by clinical experts who provide support in the background.
    The information will be reviewed & refined by experts and stakeholders, including leading academics in child development to ensure the guidance is safe and appropriate.

    Reporting

    Project updates will be sent regularly in our monthly e-newsletter which donors are invited to receive.

  • Budget

    Budget - Project Cost: £9,250

    Loading graph....
      Amount Heading Description
      £3,000 Information workshop Venue, participant travel, facilitators and resources for an Information development workshop.
      £6,250 Consultant 25 days Project

    Current Funding / Pledges

    Source Amount
    Fore £6,000 Guaranteed
  • Background

    Location

    APP provides support and information to all women and their families throughout the UK who are affected by Postpartum Psychosis.

    Beneficiaries

    Women, children and families throughout the UK who are affected by Postpartum Psychosis.
    Health professionals who support women affected by this illness, who wish to provide better information.

  • Why Us?

    Why Us?

    APP is the only UK charity dedicated to supporting those affected by PP. APP is an innovative collaboration between women, families, academics and specialist health professionals.

    We have a large lived experience community and accumulated a wealth of learning about information and support needs. We have experience of working with volunteers to develop high quality co-produced information and our Insider Guide series is used by Mother & Baby Units and professionals throughout the UK.

    Read more about the Charity running this project.

    People

    Dr Jessica Heron

    APP Director, Psychologist and Senior Research Fellow in Perinatal Psychiatry at Birmingham University

    Clare Foster

    Project Manager, Information Development and Peer Support Expert

    Ellie Ware

    Peer Support Coordinator with Lived Experience of PP

    Hannah Bissett

    Regional Reps Coordinator with Lived Experience of PP