Hughes Syndrome Foundation

Hughes Syndrome Foundation

Charity information

Hughes Syndrome Foundation

The Hughes Syndrome Foundation is the only UK registered medical charity dedicated to supporting people with the Hughes syndrome, which is also known medically as the antiphospholipid syndrome.

Founded 2001

  • Mission statement

    Hughes Syndrome is a blood clotting disorder which can potentially cause strokes, DVTs, heart attacks, blood clots in the lung and is a leading cause of miscarriage and pre-eclampsia.

    Hughes Syndrome affects all age groups, but the majority of patients are aged between 15 and 50. Although it is a relatively common condition, estimated to affect at least 1 in 100 of the population, because it was only identified in 1983, it is still a relatively ‘new’ disease which means awareness of Hughes Syndrome is often lacking amongst the medical profession.

    We aim to achieve earlier diagnosis and improved treatment of the medical condition Hughes syndrome through education, information, support, and research.

  • Aims

    Hughes Syndrome Foundation aims to:

    • To fund ongoing medical research into Hughes syndrome
    • To offer support and understanding to patients with Hughes syndrome
    • To provide information and education about Hughes syndrome
    • To raise funds to underpin all our objectives
  • Overview

    Established: June 2001

    Registered Charity Number: 1138116

    Board members: 10

    Full time staff: 1

    Volunteers: 2

    Phone number: 0207 188 8217

    Address: Conybeare House Guy's Hospital London SE1 9RT

    View charity accounts on the Charity Commission website