Polymyalgia Rheumatica And Giant Cell Arteritis UK

Polymyalgia Rheumatica And Giant Cell Arteritis UK

Charity information

Polymyalgia Rheumatica And Giant Cell Arteritis UK

PMRGCAuk exists to help people with Polymyalgia Rheumatica and Giant Cell Arteritis. These diseases cause pain and misery to older people.

Undiagnosed and untreated GCA affects over 2000 people in the UK each year who experience catastrophic sight loss.

Founded 2009

  • Mission statement

    Polymyalgia Rheumatica (PMR) and Giant Cell Arteritis (GCA) are linked rheumatic conditions that have been little known by the public and little understood in medicine. They can strike separately, but often together, and usually affect older people. They cause severe pain and discomfort and the only known effective treatment is long-term use of corticosteroids. PMR can cause serious loss of mobility, and, if not caught in time, GCA can lead to sight loss and sometimes to total blindness.

    Polymyalgia Rheumatica & Giant Cell Arteritis UK (PMRGCAuk) is a registered charity established to meet the needs of people with these debilitating conditions, their friends, families and helping professionals. We aim to provide support, through our website, forums, and a network of support groups around the UK. We want to see new research projects develop that will find a cure, and in the meantime we want to see alternative treatments develop that eliminate the damaging long-term use of corticosteroids. We also seek to educate the medical profession and the public about the human cost of PMR and GCA, in particular the risk of blindness from undiagnosed GCA. Our vision is that sight loss due to a 'stroke in the eye', which is permanent and irreversible, will become a thing of the past.

  • Aims

    Polymyalgia Rheumatica And Giant Cell Arteritis UK aims to:

    • To provide support for people with Polymyalgia Rheumatica and Giant Cell Arteritis, which strike over 50,000 older people in the UK each year.
    • To raise awareness among the public and medical professions about Polymyalgia Rheumatica and Giant Cell Arteritis, particularly the risks of undiagnosed GCA.
    • To foster research into new ways of preventing and treating these diseases, and ultimately to find a cure.
  • Overview

    Established: December 2009

    Registered Charity Number: 1128723

    Board members: 8

    Part time staff: 2

    Volunteers: 25

    Phone number: 03009995090

    Address: BM PMRGCAuk, London WC1N 3XX

    View charity accounts on the Charity Commission website