Downs Syndrome Research Foundation UK

Downs Syndrome Research Foundation UK

Charity information

Downs Syndrome Research Foundation UK

We are a Registered medical research charity founded in 1996 with the objective to get research underway to help children and adults who have Down syndrome

Founded 1996

  • Mission statement

    Our mission is to speed medical research to develop interventions & medicines to alleviate the medical, physical, developmental, cognitive and memory conditions associated with Trisomy 21 which causes all of the outcomes which are collectively described as Down’s syndrome which is a medical diagnosis & is not a fixed condition. Many aspects of Down syndrome are treated very successfully with modern medicine this includes some cures - heart surgery for heart problems, eye glasses for sight problems, antibiotics for more frequent illness, and even cures of more frequent leukemia. Only a few challenges remain and these children can have normal lives. Research to prevent premature aging will help us all and so will the research to preven early onset of dementia and Alzheimer's. We provide Bright Beginnings a new parent booklet that has vital information for parents. Our charity has an understanding of the challenges We have a dynamic, realistic but hopeful view of the potential of good medical research for people with T21. We are leading the way in promoting and facilitating medical research for T21 in the UK & the rest of the world. We are a Pro-Life organization we do not support screening programs that target these children, identifying them before they are born, then advocate terminations. These babies are valuable members of the human race, they teach us a great deal about love, caring, sharing and tolerance, they are a blessing and they make us special people.

  • Aims

    Downs Syndrome Research Foundation UK aims to:

    • To provide truthful an d good information on the health and development problems and challenges for families and for medical professionals and the latest treatment strategies.
    • To conduct fundraising to achieve these aims and to fund the continued existence of the charity
    • The objects of the Charity are to relieve the sickness of those persons suffering from Down's syndrome in particular through the provision of grants and funding for research into Down syndrome.
    • To bring parents and researchers together at conferences where the latest research can be discussed and plans for future research can be explored. So that there is support for the research.
  • Overview

    Established: July 1996

    Registered Charity Number: 1058548

    Board members: 6

    Part time staff: 1

    Volunteers: 6

    Phone number: 44 7956 499976

    Address: 5 Nobles Wood, Bells Yew Green Tunbridge Wells TN3 9EA

    View charity accounts on the Charity Commission website