The Neuro Foundation

The Neuro Foundation

Charity information

The Neuro Foundation

The Neuro Foundation provides a network of Specialist Advisors; a national telephone helpline; and an information source for those affected by Neurofibromatosis.

Founded 1981

  • Mission statement

    The Neuro Foundation's vision is to improve the lives of those affected by Neurofibromatosis, one of the world's most common neurogenetic conditions that affects over 25,000 people in the UK. As yet there is no cure.

  • Aims

    The Neuro Foundation aims to:

    • To raise funds to sustain the valuable network of our Specialist Advisors who support those affected by Neurofibromatosis both in the community and in clinics.
    • To maintain the national telephone helpline that is available to all - those directly affected by the condition; medical professionals, teachers, and social workers.
  • Overview

    Established: September 1981

    Registered Charity Number: 1078790

    Board members: 7

    Part time staff: 5

    Phone number: 020 8439 1234

    Address: HMA House, 78 Durham Road London SW20 0TL

    View charity accounts on the Charity Commission website
  • Specialist Advisor

    To provide support, guidance and information for those affected by Neurofibromatosis.